Just before I was diagnosed with SLE, I saw my GP several times for a spreading rash that looked like, and was wrongly dxd as ringworm, then, pityriasis rosea. The medicine I was given for the ringworm nearly killed me-apparently people with Lupus are never supposed to take it, so that was a huge clue that the rash wasn't ringworm. I never bought the pityriasis rosea thing, because for one, I was a bit old to have that illness and the rash migrated to other parts of my body that shouldn't have been affected by pityriasis.
Hi. Where are you getting the rash, and what does it look like? Does it recur? Does it itch? Scar or depigment? Did you see a dermatologist? Did he/she do a deep-punch skin biopsy?
Like Realisticchic, my recurrent rashes were once thought to be ringworm. Once, Lyme. Yet another: reactions to insect bites. Many dermies & other specialists later (gastroenterologists, urologists, etc.), I was Dx'ed with the SCLE variant of lupus, positive for anti-Ro. All along my rashes had been SCLE, the annular (targetlike) form. Toward the end, I was so photosensitive that 10 minutes in the sun brought on new lesions.
I got a big patch or lesion about 4 months ago on my stomach and then about three weeks ago a bunch of little lesions have popped up, i probably have about 25. it doesn't itch but i do feel incredibly fatigued and have a slight headache when new lesions pop up. derm doc DX'd pityriasis rosea. i have 2 other auto-immune diagnoses, type I diabetes and MS. I don't know... i occasionally have protein in my urine but that can also happen to diabetics.
Hi. For what this may (or may not ) add to your thinking---SCLE rashes favor photo-exposed skin. There are two types, with different appearances: (1) annular (targetlike), which in immature form are raised red papules, and in mature form are rings; and (2) papulosquamous (psoriasiform), which looks somewhat like psoriasis but isn't.
Bloodwork is tricky because the ANA treshhold test in people with SCLE rashes is not positive as often as it is in SLE. It's thought that only 70% (or so) of the SCLE "subset" are ANA-positive, vs. 95% or more in SLE---something to do with anti-Ro autoantibodies masking the ANA result, I was told. But the majority are positive for anti-Ro.
I found the rash you named. If your dermie is right, then it looks like it doesn't have anything to do with lupus. But if you still feel tired, if your joints hurt, etc. as those rashes crop up, then you could seek out a rheumatologist. I hope you work thru this! Take good care, Vee
Hi, I had pityriasis rosea when I was 19 (just a few years ago. LOL) But I will never forget it. I had it for about a week and it was all over my body. I remember because right after I got it, I met my husband of 27 years. I just knew he was going to think I had some contagious disease or something. LOL But he stuck around. I hate to tell you this, but it did take forever to get rid of. I think I had it for about 3-4 months. I remember soaking in an Oatmeal base bath. You can find in in the pharmacy or Walmart Medical aisle. Just ask any pharmacist and they will know what it is. It really helped make it go away faster, once I found out about it. I don't think it has anything to do with Lupus either, but who knows, I have SLE now and I had it also. I'm sure when they finish figuring out about this disease, there will be a lot of new things we don't have any idea about right now. Hope you feel better soon.
2005-current 5 joint surg, 3 organ surg, Lupus SLE, DDD, OA grade IV, Fibro, Hypoth, Breast Fibroids, Heart Ablation, Kid & Gallbl. stones, thyroid nodules, colon polyps, ovarian cyst, Kid and Liv dmg
thanks Vee, for the lupus info and thank realisticchic for sharing your experience with rosea. it does suck and hopefully it will clear up very soonest! i read a medical article that said that this type of rosea and lupus share the same antigen markers but for about only 80% of lupus patients. that was what made me think to ask if people on this message board have maybe had both-