Re: New Here with Questions
Linda, hi & welcome. I wear hats (plus long sleeves, trousers, sunblock, etc.) in daytime sun. I was Ro-positive, a subgroup that's almost always very photosensitive. Because I'd had years of nonscarring targetlike SCLE rashes on arms/torso, I never gave my scalp a thought. But then my rheumie saw me wearing a visor & warned that I was ALSO eligible for "discoid" lesions, which, when on your scalp, can cause permanent hair loss. I've covered up ever since. (Just as he'd warned, I did get a scarring lesion, on my face.)
He told me that "rashes can cross subsets". An example: someone with classic SLE, may have had malar rashes; but a meaningful percent will ALSO get discoid (scarring) or SCLE (nonscarring) lesions. In other words, the rash(es) you've already had don't preclude your getting other types of lupus rashes.
Plaquenil upset my stomach initially. But because I'd had 20+ years of GI misery & other chronic problems, I was used to that & just rode it out. Once I adjusted (3-4 days), no problems since. In his book [see below], Dr. Wallace writes that some people do better on the brand-name Plaquenil, as opposed to the generic hydroxychloroquine.
The most useful thing I did after Dx was to visit my local library. There are two lupus hardcover authors I recommend: (1) Dr. Daniel Wallace, and (2) Dr. Robert Lahita.
I hope your scalp heals without any lasting damage. Best wishes, Vee
Last edited by VeeJ; 08-06-2008 at 03:47 AM.