Shaunaj, hi. Is the SCLE rash you describe really known as "SCLE, annular form"? Do the lesions start as raised red bumps, expand into perfect circles with clear centers, then expand outwards until they lose their perfect circularity? Then fade, generally without scarring &/or depigmenting?
You can probably guess why I ask! Yep---I had such rashes 4 times a year, for 8+ years. My doctors finally caught me positive for anti-Ro, which is the autoantibody most often seen with this rash. I stayed negative for ANA, which I was told happens perhaps as often as 1/3 of the time in "Ro-only" lupus patients.
I've been on Plaquenil for 8+ years. I'm VERY careful about sun exposure, as anti-Ro people tend to be horribly photosensitive. Most of my chronic problems virtually disappeared, and pretty quickly (GI misery for 20+ years, urinary cystitis and occasional stones, migraines, weight loss, B-12/Folate anemia, hair loss, neuro-like tingling, racing heart, etc.). What still remains: joint pain, pain along long bones of arms/legs, and episodic fatigue. i.e., I'm MUCH better off than I was pre-Dx & treatment.
I was told (by rheumie affiliated with major teaching hospital in huge Eastern city) that SCLE is treated like SLE. It's viewed as typically being an intermediate form of lupus, falling between discoid & systemic. However, because some people with SCLE do experience the full range of problems seen in SLE, close monitoring is required. So I have regular checkups, with bloodwork & urinalysis done periodically; plus have my eyes checked 2X yearly (because I take Plaquenil).
Honestly? I doubt strongly that lupus can affect a PAP smear. (But I'm only a patient!)
Why did you think you needed a colonoscopy? I ask because I was treated for chronic GI problems (unsuccessfully
) for over 20 years. I was astonished when my GI problems abated so quickly. (Disgusted, too---after having all those awful tests so many times!) I had agonizing joint & shin pain way back in early adolescence... I think my problems took decades to progress...
Truly, I suspect my suburban doctors had never heard of SCLE! I didn't look like "classic lupus", so therefore they thought I was a headcase. (SCLE was given its own names/descriptions in 1978 or so, so it's kind of the new kid on the block, in the world of lupus.) My city doctors knew exactly what to test for, as they were quite familiar with it.
FYI, Dr. Wallace covers SCLE rashes & manifestations in his excellent hardcover, available in most libraries & bookstores. I hope you post more when you can---OK? Meanwhile, all my best wishes, Vee