Does anyone get worse when they walk for any length of time. I have found that sometimes when I walk, like going shopping etc, my legs end up feeling like lead weights and then the brain fog sets in, then I feel quite nautious.
Sometimes I get the brain fog first and actually thats a good indicator that I am in no state to walk to far. However yesterday I got up feeling Incredibly tired and I couldnt shift it, anyway I went out regardless and after a few hours I just gave up, I was even more tired, my legs were aching, my back was so painfull aswel. I got home and all I could manage was to crash out on the setee all evening.
Does anyone with Lupus or is it part of the whole thing to have difficulty walking and get brain gog?......Sometimes I am in a wheelchair, again, is this par for the course with Lupus?
Hello! Yes, I am in a flare now and I can't focus or concentrate. I can't even see straight and I feel like I'm going to pass out or black out when I have to walk or do anything task wise. My legs don't feel like weights, though. I just get extremely fatigued and out of breath like I just ran a marathon or something when all I did was walk to the end of the driveway. I don't need a wheelchair, though.
Have you been in touch with your doctor about this? Maybe he can run some tests or prescribe something for you? My rheumatologist has me on experimental drug options for now and I may end up doubling my Plaquenil medication soon to see if that helps. Hope you get better - I'd call the doctor and tell him your symptoms.
Yes, I've had in the past (with flares) a feeling of heaviness and muscle achiness in my legs, as if my legs were blocks of cement that I was trying to move. Sometimes it was so bad, that I had trouble getting up just one step. I was also fatigued, but the walking and going up stairs was even more exhausting.
However, also...unrelated to my lupus, in 2003, I suddenly started feeling low back pain for the first time in my life. I was even thin and exercising,working out with weight machines, etc. on a regular basis. I was getting what I now know are low back spasms now and then over quite some time. Then after a year or so, the spasms never went away. I had spasms in my low back anytime I walked around or stood around. And over a period of about 3 years, I just worsened and could not understand why. I developed deep, achy, cramp-like pains in my buttocks muscles area and also into the backs of my legs. After a while, I noticed that I could not stand up straight at all, it was making all those pains even worse. Walking was getting harder & harder and I also suddenly got some severe pain inside my spine, which was a burning, seethign pain. Then I got muscle spasms in my legs and other places. I ended up in such severe pain and just about unable to walk anymore. I had a lumbar spine MRI done and lo and behold, I had severe spinal stenosis, which is something that might happen when one is in their
70's or so. My spinal canal was being squeezed/compressed and it worsened while standing straight. I had alot of bone overgrowth, buckling and thickenng of a spine ligament, disk herniations & bulges, and also a torn disk. SO I was diagnosed with spinal OA and spinal stenosis. I ended up needing to have surgery to cut away the bone, ligament, and some disks. Of course I am NOT saying that is what you have, but a lumbar spine problem could be a possibility. It could be something totallly unrelated to lupus.
Have you mentioned the back and leg pain to your doctor? If not, you really should. You might need to have both x-rays and an MRI done to rule in or rule out spine issues. It is very common for many different spine problems to cause pain & spasms while sitting and standing, or walking as these activities put the most pressure on the spine. ANd if something is amiss in there, it makes it even worse.
In the mean time, you might want to try alternating ice and heat over your low back. I personally find that moist heating pads feel very good on my back spasms. But definitely tell your doctor about it and maybe he will refer you to another specialist.