I was in a similar position as you, running around the hospital all day long, when I was diagnosed with AVN. At the time, I had severe left hip pain and I was on crutches for 12 weeks and was not allowed to put any weight on that leg. I was prescribed high dose ibuprofen and was taking that 4 times a day and I was also taking a low dose of a stronger pain medication and those seemed to help. I did gentle exercises to keep the joint flexible but pretty much, I rested the joint. After 3 months, the hip felt better. Since then, I've developed AVN in my other hip and both knees. I've had to give up running to prevent further damage and I've been told I will probably eventually need surgery. There are several different surgical procedures, ranging from core decompression (for early AVN) to joint replacement (for advanced AVN). A friend of mine had her hip replaced for AVN and she says her quality of life has improved greatly. She is doing so well in such a short time after her surgery! I have also heard of people using bone stimulators / electrical stimulation to see if they can get bone to grow in the area. I've never tried it and don't know how effective it is. I've had to roll around the hospital in a wheelchair at times when I was too tired to get around on crutches and when the AVN started affecting both legs. Since you're in the rehab field, people around you would probably be quite supportive if that's what you needed to do. What has your surgeon recommended?
Originally Posted by melmo1
I have had lupus for about 2 years and I have been on a steriod the whole time becuase I had it so bad. Well I had chemo and they were finally telling me I could start getting off the steriod and then my hips started hurting so bad I could barely walk. I asked my doctor and he mentioned I might have Avascular necrosis, but he didn't think that was it. Well I went to orthopodist becuase it continually worsened and I have it in both shoulders and both hips. Has anyone had this problem and what did you do???? I am miserable and I have to walk all day. I am about to start an extern as an SLP on the acute floor at a hospital. By the way.. I'm 23 so I'm to young for any hip surgery. Any suggestions would be greatly appreciated!