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-   -   Do I have lupus if I have an lupus type inhibitor in my blood (http://www.healthboards.com/boards/lupus/651676-do-i-have-lupus-if-i-have-lupus-type-inhibitor-my-blood.html)

Curious31 11-24-2008 08:31 AM

Do I have lupus if I have an lupus type inhibitor in my blood
 
Do I have lupus if I have an lupus type inhibitor in my blood

VeeJ 11-24-2008 09:23 AM

Re: Do I have lupus if I have an lupus type inhibitor in my blood
 
Curious, I'm not familiar with the phrase "lupus inhibitor". Are there any other words you know?---to restate your question? Vee

Curious31 11-24-2008 11:15 AM

Re: Do I have lupus if I have an lupus type inhibitor in my blood
 
I'm sorry, I just didn't know where else to ask... It's been since I was about 10 years old... and I'm trying to find out information. My mother was told when I had a pro-longed clotting time, they sent me to be checked at speacial hospital in the cancer area and they found and wrote on the report that I had a lupus inhibitor, or a lupus type of inhibitor in my blood. I don't understand if that means I have lupus or could get it. I'm really stressing for answers, someone please help. And thank you. also, I'm 31 if that helps.

VeeJ 11-24-2008 05:14 PM

Re: Do I have lupus if I have an lupus type inhibitor in my blood
 
Curious, Dr. Daniel Wallace, in his excellent lupus hardcover, discusses a subbstance found in blood identified more than 50 years ago, called "lupus anticoagulant". It was found to "PROLONG phospholipid-dependent clotting time tests", as he phrases it. Maybe that's what you're thinking of??? But he adds that the old name is totally misleading, because people with this blood substance are more apt to form blood clots!

Years later, yet another clotting-related subtance was identified & was named "anticardiolipin antibody".

But now a broader name, "antiphospholipid syndrome", abbreviated APS, is used as a more encompassing term for this blood clotting disorder. There's a "sticky post" ( = permanent info post) on APS at the top of the thread list that you should read, to see if it rings any bells with you.

APS can co-exist with lupus, but it can also occur "standalone".

I read that only about 1/3 of the people who test positive for these autoantibodies actually have symptoms & problems. A rheumatologist would be the specialist to determine if a person has the antibodies, how significant a risk they pose, whether treatment is indicated, etc.

This was just a guess on my part, plus I'm only a patient---but I hope this is what you are after. Best wishes, Vee

Curious31 11-25-2008 04:25 AM

Re: Do I have lupus if I have an lupus type inhibitor in my blood
 
Yes. Thank you. That is great help for me... and a place that I may start. I appreciate your time and input. Have a great holiday.


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