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Old 01-08-2009, 11:52 PM   #1
Join Date: Jan 2009
Location: grenada
Posts: 1
lennise HB User
need to know if i will get worse

Here is my story i am 25 i was digonose with lupus when i was 24 that was of may problems started with joint pain then hair lost...i must say i never paid any attention to these things i just thouh it was the cold and that i had to much dye in my hair....silly me right.......

my question is i will like to know if i will get worst since i have been diganose and they started me on the medications which is steriods, plaquenil,cellcept and a low dose asprine i have not had any pain at all........

my hair started growing back and i feel great just a little tried now and again........i want to know if i will get worst .......someone please let me know what i should expect......i am very thankful right now but i know there are people out there wondering just like me....... sometime i believe that i am not sick.....

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Old 01-27-2009, 08:49 AM   #2
Join Date: Feb 2004
Posts: 5,328
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: need to know if i will get worst

Lennise, hi & welcome! I'm obviously just a patient, but I've definitely read that many people with lupus do pretty darned well in this day & age. In the modern age, we can have ongoing regular follow-ups with better doctors, better meds, better tests to monitor us (like ongoing bloodwork & urinalysis), etc. Medical science has come a long way, with many advancements.

Have you gone to your library or bookstore to look for full-length books on the subject? There's one British rheumie/author who's well-known around the world: Dr. Graham Hughes. And American rheumie/authors: Dr. Daniel Wallace, or Dr. Robert Lahita. Why not borrow & browse all 3, if possible?

I hope you keep posting regularly. You'll meet very nice people who've had a wide range of experiences. Post more when you can, OK? With my best wishes to you, Vee
P.S. Great news that you're feeling so much better on your meds! Yay!

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