Sophie, "Whew!" is right! I was glad to see your update.
When do you see your rheumie next? Has he formally delivered a lupus Dx, or were you sent to the hematologist to rule out a problem in that specialty?
If you do have a Dx of lupus, or are the brink of getting one, then the hematologist is no doubt correct in saying that your rheumie will take over from here, as a rheumie typically acts as the lead dr. for a lupus patient.
Are you on any meds at all yet? Lupus meds that suppress autoantibody production help on many fronts, including inflammation that causes pain.
Bye for now, Vee