Thank you all for your replies!
Sophie - Plaquenil did not make me gain weight. I wish it still worked for me. You should see some results in 3 to 4 months. Good luck!
This is my third rheumatologist and I really like and trust her. The first two were quick to determine what I had. The first took my rosacea to be a malar rash. With that I would have met 4 criteria. The second thought I had primary Sjogrens and not Lupus. The one I have now has decided on a wait and see approach, just trying to treat the symptoms. Recently I have experienced red and hot joint issues in my hands and pain in the bottoms of my feet which may point to RA. Who knows. She thinks I'm at the beginning of the process and I should get a diagnosis soon.
I think it is just hard not knowing where all this will lead to. Such is life, right?
Sorry to hear that the methotrexate caused such problems for you. I hope the Plaquenil continues to work for you.
Take care all and thank you for your info.!