It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-31-2009, 08:31 PM   #1
Member
(female)
 
Join Date: Jan 2008
Location: USA
Posts: 98
luvmybabies2 HB User
Smile Lupus and new hope....

I have hypothyroidism, but I am not being properly treated right now due to adrenal fatigue. I have been studying lupus and all sorts of autoimmune diseases for a while now. I had a hunch that lupus, scleroderma, and hashimotos' were all caused by long term undiagnosed subclinical hypothyroidism, due to bad testing and poor medicine like synthroid. So, in my many books that I have read and all the research I have since learned, I am wondering if anyone here with Lupus has ever tried Armour to help with their Lupus? Armour is a natural desiccated thyroid medication. And I have heard of some success with it, but would like to meet others who have found success with it too.
Thanks
Mia

 
Old 02-05-2009, 06:44 PM   #2
Junior Member
(female)
 
Join Date: Dec 2008
Location: phoenix, az
Posts: 33
wants2Bwell HB User
Re: Lupus and new hope....

hello
i have been hypo since 1978. I was probably hypo most of my life but the goiter showed up in my teens. I have recently been diagnosed with celiac and lupus. Felt like a truck hit me for 20 years on synthroid. Started cytomel a month ago and starting to feel human again. I wonder if the lupus will go away. The pain has subsided significantly since starting cytomel. Go figure!

 
Sponsors Lightbulb
   
Old 02-05-2009, 09:02 PM   #3
Member
(female)
 
Join Date: Jan 2008
Location: USA
Posts: 98
luvmybabies2 HB User
Smile Re: Lupus and new hope....

have you or your doctor ever thought about trying Armour for your lupus?

Quote:
Originally Posted by wants2Bwell View Post
hello
i have been hypo since 1978. I was probably hypo most of my life but the goiter showed up in my teens. I have recently been diagnosed with celiac and lupus. Felt like a truck hit me for 20 years on synthroid. Started cytomel a month ago and starting to feel human again. I wonder if the lupus will go away. The pain has subsided significantly since starting cytomel. Go figure!

 
Old 02-06-2009, 05:54 AM   #4
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 4,936
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: Lupus and new hope....

Hi. My thyroid function is normal, so personally I would NOT take a thyroid supplement, be it Rx or "natural". Having seen people in the "hyperthyroid phase", before they turned hypothyroid---well, they felt awful on both ends of the spectrum.

Systemic lupus involves the unwanted production of a wide range of very specific autoantibodies (anti-ds-DNA, anti-Sm, anti-Ro, anti-La, etc.) not seen in normal people---and not seen in people with "only" thyroid conditions. The goal of lupus treatment is to *suppress* the immune response to disrupt that unwanted production.

I'm certainly no doctor or biochemist [Ha! What an understatement!], but I picture treatment of hypothyroidism as different. Isn't the goal to *augment* a substance the body is making too little of? But maybe excluding the Hashimoto's form, in which anti-thyroid antibodies are seen?

There have been people here in the past with both lupus & Hashimoto's, so hopefully they'll post & make much better sense than I just did! With best wishes to all, Vee

 
Old 02-06-2009, 06:25 AM   #5
Member
(female)
 
Join Date: Jan 2008
Location: USA
Posts: 98
luvmybabies2 HB User
Re: Lupus and new hope....

Vee, when you say that your thyroid function was so called "normal" can you share your test results? My test results were normal too, it wasn't until I did my own research that found out that my test was not normal. According to 15 doctors that I saw, including endocrinologists, my thyroid is still normal, but according to the AACE and clinical laboratories and U.V.A, and my new doctor and Dr. Broda Barnes and Dr. Mark Starr, and Dr. Stephen Langer and the morning basal body temperature then my thyroid is far from normal. Had i not pursued this very hard, I would still be undiagnosed. The lab values changed in 2003 and I could not find one lab or doctor in Virginia (to this day) who knows about the new thyroid lab ranges. So please post your test results, then I will give you the proof that the labs are not accurate in our society today.
Thanks
Mia

Quote:
Originally Posted by VeeJ View Post
Hi. My thyroid function is normal, so personally I would NOT take a thyroid supplement, be it Rx or "natural". Having seen people in the "hyperthyroid phase", before they turned hypothyroid---well, they felt awful on both ends of the spectrum.

Systemic lupus involves the unwanted production of a wide range of very specific autoantibodies (anti-ds-DNA, anti-Sm, anti-Ro, anti-La, etc.) not seen in normal people---and not seen in people with "only" thyroid conditions. The goal of lupus treatment is to *suppress* the immune response to disrupt that unwanted production.

I'm certainly no doctor or biochemist [Ha! What an understatement!], but I picture treatment of hypothyroidism as different. Isn't the goal to *augment* a substance the body is making too little of? But maybe excluding the Hashimoto's form, in which anti-thyroid antibodies are seen?

There have been people here in the past with both lupus & Hashimoto's, so hopefully they'll post & make much better sense than I just did! With best wishes to all, Vee

 
Old 02-06-2009, 09:28 AM   #6
Newbie
(female)
 
Join Date: Feb 2009
Location: Chicago
Posts: 1
ItIsntLupus HB User
Lightbulb Re: Lupus and new hope....

I was diagnosed with Lupus (SLE) in 1999, and gone slowly downhill. I have felt unbelievably bad for the past 2 years, the pain is excruciating and exhausting and there is no cure. I now have hope I didn't have before. I think I was mis-diagnosed, I think others have been as well, and that I actually have Wilson's Temperature Syndrome (WTS)

WTS is a deficiency in the T3 thyroid hormone, and it does not show up on lab tests. Cytomel (extended release must be mixed by compounding pharmacy) is the T3 supplement. One of the symptoms is an average body temp less than 98 degrees. I've been 96-97 all my life. I've had just about every other symptom at one time or another, most at the same time. It's CURABLE in as little as 3 weeks to 1 year. The cure is relatively harmless, so unless there is a specific counter-indication, the suggestion is try and see if it works. The treatment is analogous to going on birth control to regulate periods, after a couple of months on the pill, most never have the irregular periods again, but if they do, they can go back on the pill, etc.

After spending the past 5 years paying over $1000 month for my prescriptions alone, most of which are poison for my body, even the thought of being cured and back to my old self is elating. Please cross your fingers for me – I start the treatment next week.


Quote:
Originally Posted by wants2Bwell View Post
hello
i have been hypo since 1978. I was probably hypo most of my life but the goiter showed up in my teens. I have recently been diagnosed with celiac and lupus. Felt like a truck hit me for 20 years on synthroid. Started cytomel a month ago and starting to feel human again. I wonder if the lupus will go away. The pain has subsided significantly since starting cytomel. Go figure!

 
Old 02-06-2009, 02:53 PM   #7
Member
(female)
 
Join Date: Jan 2008
Location: USA
Posts: 98
luvmybabies2 HB User
Re: Lupus and new hope....

You are absolutely right! I wish more people knew what you know! But Armour thyroid also has T3 in it and I have heard that it's working wonderfully for many Lupus patients! So I will be very curious to see how you do on this treatment, please keep us updated and let us know!
I am so excited for you.
Mia

 
Old 02-07-2009, 08:12 AM   #8
Senior Veteran
(female)
 
Glojer's Avatar
 
Join Date: Mar 2005
Location: St. Louis, Mo. USA
Posts: 3,692
Glojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB User
Re: Lupus and new hope....

This is all so very interesting. I have been working to get my thyroid and other auto immune issues in line for years. I have started on the T3 cytomel and it has helped the fatigue and certainly finally adjusted my numbers.

I think Veej's info may be correct in that the goal for people like me with Hashmotos is to suppress the antibodies. Making one system of our bodies work better can always benefit another.

Glojer

 
Old 02-13-2009, 07:21 PM   #9
Newbie
(female)
 
Join Date: Feb 2009
Location: conway ar. 72032
Posts: 2
tiredmom71 HB User
Re: Lupus and new hope....

hi im ramona in conway,wow! thats great to know.ive been in alot of pain accompanied by fatigue.i recently had to quit my job and apply for disibility due to lupas,arthritis,and high blood pressure.ive experienced chest pn.in the last 2 weeks,have you had that problem with lupas?

 
Old 02-13-2009, 07:26 PM   #10
Newbie
(female)
 
Join Date: Feb 2009
Location: conway ar. 72032
Posts: 2
tiredmom71 HB User
Re: Lupus and new hope....

i will be prayiong for you.that would be awsome if it works for you.i know the pain u have experienced and i dont wish that on anyone.please keep us posted and if it works for you than im willing to try it! anything to not feel the way i do everyday.

Last edited by tiredmom71; 02-13-2009 at 07:28 PM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
lupus? 3boysmommy Lupus 4 03-24-2008 09:58 AM
Anyone with Fibro and Lupus? Angie10 Fibromyalgia 11 08-23-2007 12:33 PM
could it be Lupus???????? Jamie2703 Lupus 3 09-30-2006 08:12 AM
new to lupus please can anyone help with blood test question sisters3 Lupus 5 09-08-2006 07:38 AM
Questions about Childhood Lupus Childhood LUPUS Lupus 7 06-10-2006 06:40 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (172), ladybud (43), AngelicBrat (16), luca689 (7), ksp (6), neveragain444 (6), luvinmusiq (5), brooklyngirl (4), Daisygrace (4), AgedFlowerChild (3)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (904), Titchou (847), janewhite1 (823), Gabriel (759), ladybud (754), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 08:46 PM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2014 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!