I saw the Rheumatologist today ...help!!!! - Lupus Message Board

sophie56 · 02-19-2009, 07:45 PM

A month ago my Hematologist told me I had Lupus and referred me to a Rheumatologist. The Rheumie said my ANA was 1:150 and I have many of the symptoms. He said something that starts with a G (sorry can't remember what he called it) was high and with Lupus was generally low but high with Fibromyalgia but that Fibro and Lupus go hand in hand. Basically he redid all tests I just had a month ago and told me to come back in a week

Any thoughts would be SO appreciated..
Thank-you ,
Sophie

lilsunshine46 · 03-12-2009, 02:52 PM

Maybe Guillian-Barre I think that is the correct spelling. It is a nervous system disorder that causes muxcle weakness{in a nutshell}.

Bonnie

klbk · 03-13-2009, 05:41 AM

Hi Sophie 156:
Are you saying he said a lab test that starts with a G was high? I'm not sure what test it was, but you might refer to the sticky at the top of the lupus boards referring to lupus lab tests.

I presume your doc is doing specific testing to differentiate your disease. A lot of these autoimmune processes are in the same family. Once the body decides to attack itself, it turns on all kinds of responses. It can take a while to figure out the details.

Good luck!

Fibrobugsme · 03-13-2009, 01:38 PM

Quote:

Originally Posted by sophie56

A month ago my Hematologist told me I had Lupus and referred me to a Rheumatologist. The Rheumie said my ANA was 1:150 and I have many of the symptoms. He said something that starts with a G (sorry can't remember what he called it) was high and with Lupus was generally low but high with Fibromyalgia but that Fibro and Lupus go hand in hand. Basically he redid all tests I just had a month ago and told me to come back in a week

Any thoughts would be SO appreciated..
Thank-you ,
Sophie

Sophie did you get a copy of your lab report? You should always do that and keep it in a file so you can refer to it. I have Fibro and there isn't anything that comes low with Fibro other than maybe vitamin D and a lot of people who have Fibro have low Vit. D. Usually with Fibro your tests all just come back normal. Mine do but for low Vit D and my SED rate that's high and my CRP that's also high. so I guess I'm a freak of nature until they decide where to put me LOL!!!
Take care,
Sharon

goldenwings · 03-14-2009, 08:16 AM

Hiya sophie,

I don't quite understand what he means - lupus and fibro go hand in hand - as this statement is wrong.

There are people with lupus who don't have fibro, and people with fibro who don't have lupus. You won't as a matter of course develop fibro if you have lupus so this seems an odd thing to say to me.

This point needs clarification from him - you need good info and up to date info when dealing with doctors and don't ever be afraid to question things if you are uncertain of what has been said.

Take care,
goldenwings