Hi Sophie -
I saw in your other post that you are just tested and waiting to see ruhmatologist - is that right? Me too
your ANA number doesn't look like other's I've seen - mine is 1:18, relatively low, I think the normal way to express the ANA is 1:XX - and it referest to the number of dilutions that the tester went through and still saw positive results. The larger the second number the more active the disease at the time of the test.
Sophie, I read about two measuring scales in Dr. Daniel Wallace's very helpful lupus hardcover. You could browse it in many libraries & bookstores.
1. ratios that keep doubling, e.g., 1:160 (read as "one to one-hundred and sixty"), 1:320, 1:640, 1:1280, etc. Dr. Wallace considers 1:1280 high.
2. the other is called International Units. Dr. Wallace considers anything over 30 I.U.'s high.
But ANA is elevated in various conditions, not just lupus (like RA, Sjogren's, scleroderma, Addison's, Hashimoto's thyroiditis, polymyositis, vitiligo); also due to family tendency, aging, or a passing virus. It doesn't mean that much in & of itself, except to encourage further study, probably.
Sophie, I was also wondering if you'd been told the results, as opposed to actually seeing same. You could just ask for a copy.
One reads Fibro is common in lupus patients. Weirdly, most everything my local drs. ascribed to fibromyalgia got much better when I started Plaquenil, which makes me wonder: just how often do symptoms overlap?
Good luck with your two upcoming rheumie appts. I hope you get clarification soon. Not a moment too soon, as the saying goes! Best wishes, Vee