It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-26-2009, 10:00 AM   #1
Newbie
(female)
 
Join Date: Feb 2009
Posts: 1
DWells4141 HB User
High Titer - Panicking

I went to a doctor because I was concerned about diabetes. As an aside, I mentioned that my finger, toes and shoulder joints hurt, as well as what seems to be the muscles in my upper back and arms. I am also tired a lot. He ran an ANA test which came back positive with a titer of 1:640. He didn't say what this meant, but looking on the internet myself alarmed me. He said that I could return to him in three weeks to repeat the test, or go sooner to a rheumotologist, who would repeat the test and maybe do more tests.

Has anyone else had such a high titer?
Is it necessarily lupus?
Any tips on how to deal with the stress of waiting for doctor appointments and test results?
Would you wait three weeks or rush to the rheumotologist now?

In a panic,

Daisy

 
Old 02-27-2009, 02:25 AM   #2
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 5,006
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: High Titer - Panicking

Hi & welcome. Positive ANA does not necessarily mean you have lupus. It is also positive in a number of autoimmune conditions, e.g., rheumatoid arthritis, Sjogren's syndrome, polymyositis, scleroderma, Hashimoto's thyroiditis, Addison's, ETC. *And* it may also elevate *without* an autoimmune condition, e.g., due to a passing virus or to a family tendency. So it's really only a "threshhold test" that suggests more tests & careful review...

In his helpful hardcover for lupus patients (in most libraries & bookstores), Dr. Daniel Wallace says he considers 1:1280 "high". But since titer tests are notoriously hard to perform with high accuracy, especially when done by non-rheumatology labs, maybe you should view your result as suggesting you see a specialist, instead of focusing on the actual number just yet.

Also, a rheumatologist runs additional *more specialized* bloodwork, to check for elevation of specific autoantibodies, depressed complement levels, etc. Since quite a few of these can fluctuate (from what I've read) with flares, that's another reason to see a rheumie soon.

Please don't panic yet! Admittedly, it's hard not to worry. But based on one "fuzzy" lab result (ANA is really sort of "fuzzy") , you can't know yet that you have any ongoing condition, or what it is if there really is something going on. And even when there IS, sadly it can take quite awhile to determine that, especially in milder cases of these conditions. So hang in there, OK? Also, I hope you keep posting here: we'll be good company for you! Post more when you can. With my best wishes, sincerely, Vee

 
Sponsors Lightbulb
   
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
High ASO Titer...rheumatic fever...need help DESPERATELY Victoria05 Infectious Diseases 20 02-25-2012 10:19 AM
High ANA titer with Vitiligo? barry590 Lupus 5 07-29-2010 10:47 AM
Positive ANA and high ASO caitsmom59 Immune Disorders 0 12-13-2008 04:44 PM
Very high ANA titer results and nucleolar pattern: lupus or scleroderma? thinkfast Lupus 10 01-06-2008 06:57 PM
High ANA titer count mufpuf Blood and Blood Vessel 1 07-08-2007 07:00 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 03:27 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!