(***warning*** this is a long one)
each day is different ... it all depends ...
how much sleep did i get? did i sleep well? is this fatigue again? then sleep doesn't matter ... i can't get enough!
if i have a migraine i grab an ice pack for my head and literally numb my brain
if i have nausea i turn to herbal remedies ... or hello white throne
i am allergic to milk and crave all things dairy when the monthly hormone imbalance strikes, sometimes the depression sneaks a visit too
if today my fingers hurt they might not tomorrow or they might be worse ... but it can be a wrist & thumb & then fingers on the other hand ... it can change thru the day or persist over a week. when i need to, i see my GP to get me thru the flares ... MEDS short courses of prednisone etc.
I am seeing my rheumatologist less frequently now as i know that i am going their for a perscription and the meds mess with me
my worst is all the referals they send you on ... i am not on medical aid and each speacialist has specailist prices, each perscription comes with a 'Do not substitute for generics' stamp
dermotologist (my husband has discoid)
dietician (their instructions are worse than the perscriptions)
lab fees for bloodworks
I have had some nasty episodes with hospital stays & emergency room visits
1996 i Lost feeling in 3 finger tips, they turned black ... nearly lost them, they put me on warfarin. SLE undiagnosed
2003 Pericarditis (heart issue) OUCH ... was initially diagnosed as glandular fever ...
2006 viral infection in my ear (a friend had had chicken pox) still have some hearing loss
oh i have had umpteen cases of so called tendinitis, gout, infections, hyperchondria etc but turned out SLE
Had the balloning from prednisone/cortisone fortunately don't take it long term ...
some days it doesn't matter because the bird's that come bath outside my bedroom window keep coming back & one of my dogs did something so adorable ... and i forget everything else.
I am working on growing organic vegetables and exercising (need to quit smoking) and generally have a positive outlook, life has it moments of absolute splendour that makes the journey worth the while