It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 03-06-2009, 06:46 AM   #1
Newbie
(female)
 
Join Date: Mar 2009
Location: Champaign, IL
Posts: 2
IllinoisMom HB User
Unhappy Are my symptoms Lupus?

Hi, I am currently waiting for test results to see if I have an autoimmune disease, either rheumatoid arthritis, lupus, etc.
I have had off and on joint pain for about 15 years now, my blood tests are always normal. Recently I had a terrible flare-up of pain, bilateral joint pain in my shoulders, elbows, wrists and knees. I also have had anemia (cured by iron supplements), my hair is always falling out but it's so thick you can't tell, reynaud's in my feet, restless leg, fatigue, depression, strange red bumps on the palms of my hands, red on my face, and little red bumps on face (diagnosed as rosacea).
I have another couple days till my tests come back, but I am skeptical it will show anything as it never has before. What do you all think? Something is wrong, just wish I could find out what!
Thanks for listening.

 
Old 03-06-2009, 04:53 PM   #2
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 4,822
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: Are my symptoms Lupus?

IllinoisMom, hi & welcome. I'm sorry you've had so much going on, with so few answers. I was in that rut, also, for a long time. It's numbing.

Is the dr. running these repeated tests a rheumatologist?

Have you seen the results of previous tests? If not, you should ask for copies for your file. I'm thinking (but I'm only a patient!) that you should see, in addition to standard bloodwork & the basic ANA test, a good number of *very specific* tests, such as anti-ds-DNA, anti-Sm, anti-Ro, anti-La, rheumatoid factor, anti-RNP, etc.

Along those same lines: there are at least 16 (!) autoantibodies & complement problems seen in lupus. i.e., it's not just the two (anti-ds-DNA & anti-Sm) that are actual "criteria". To see a list, look for Dr. Daniel Wallace's excellent lupus hardcover in your library; he lists many. (Also, Dr. Robert Lahita is another fine author.)

Speaking of "criteria": have you seen the "sticky posts" (permanent info posts) at the top of the thread list? One contains the diagnostic criteria for systemic lupus; you generally (not always) have to meet 4. And, FYI, there are also some "subsets" for which you may meet fewer than 4 criteria (discoid, subacute cutaneous, drug-induced, etc.) Once you meet a given criterion, it's permanent: think of checking it off in indelible ink.

Has your dr. discussed possibilities, test results etc. with you? Does he share his thinking on how many diagnostic criteria you've met? In short, do you feel you'll ever get answers from this dr.?

I hope you post more when you can. Bye, with best wishes, Vee

 
Sponsors Lightbulb
   
Old 03-07-2009, 11:15 PM   #3
Member
(female)
 
Join Date: Feb 2009
Location: Texarkana, TX
Posts: 75
Jenbuck29 HB User
Lifespan of Lupus?

I am concerned for my aunt. She had had lupus for 15 years! I love her and don't want to lose her! Clueless about this disease! Just want to be a support for her!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Antiphospholipid Syndrome can mimik MS! Symptoms of MS unexplained? Please read! AngelicBrat Multiple Sclerosis 24 09-13-2010 01:44 AM
what were your first symptoms of lupus? duan65 Lupus 25 10-01-2009 06:27 AM
please share stories of symptoms before you DX with lupus kw123 Lupus 8 02-05-2008 06:24 AM
Symptoms, lupus, from concerned -male- (Long post...) Dartkick Lupus 8 07-14-2006 03:43 PM
Long History of Symptoms... No Resolution, Lupus? Please read. playdrv4me Lupus 6 05-01-2005 06:36 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (170), ladybud (41), AngelicBrat (16), luca689 (7), neveragain444 (6), ksp (6), luvinmusiq (5), brooklyngirl (4), Daisygrace (4), AgedFlowerChild (3)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (855), janewhite1 (823), Titchou (769), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (654), BlueSkies14 (610)



All times are GMT -7. The time now is 08:39 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!