hi d ... i too wonder how i still have any level of sanity left ...
everyday is a new day ... i joke sometimes and go from head to toe to see what is being attacked today ... my mum-in-law made a crack one day when i had no symptoms and she asked if i was sick ...
so here i am on the other side ... i live in a very full house with loads of people and still feel very alone. each new symptom is either mocked or blamed on something else ... can be quite frustrating

New symptoms and weird ones i try deal with but the hospital trips scare me ... i guess i am used to the travelling pains ... also not sure when to panic ... i try ride things for a few days the off to the GP, i have a good relationship with my GP (was responsible for my diagnosis) so i see him in the easier times and when i need to i go to the rheumie (oh how i dread that ... he is good to me as a private patient even waivers the consultation at times) but to be quite frank
i am looking for a rheumie that accepts the use of marijuanna as part of the treatment ... helps me with nausea, migraines, moodiness & also makes me see there is a lighter side ... so i accept the short term memory loss in exchange for the depressed me

PS: keep posting ... you are not alone