I was diagnosed with lupus in 2007 and have been relatively well since then. I take Plaquenil twice daily and Provigil for fatigue. I really haven't had any symptoms other than achy joints and fatigue.
Over the weekend I spent quite sometime outdoors. I am now experiencing what I call the flu. Achy all over, sore throat, slight headache, and very low-grade fever 99.0. Could this be from being in the sun? I have never felt like this before (other than the flu). I also had the flu shot this year and no other family member is ill. Any help is appreciated!
Carrie, I read that this year's flu shot didn't protect against most of the strains out there. I got totally slam-dunked: had real flu for the first time since the early 1980's. It started in early Feb., lasted a month, and I'm only getting real energy back now (late March).
When out in the great outdoors, did you wear sunblock, hat, long sleeves & leggings, etc? And avoid midday sun (say, 10-4)? I ABSOLUTELY HATE it, but I became so photosensitive that I accepted that I must do those things.
Hi VeeJ...Thanks for responding. I have heard that about the flu shot as well. However, I do work in a hospital and I figured my chances of getting it were high. I also figured that I would have already come down with it.
I do wear a light sunscreen (in a moisturizer), but I was not wearing long sleeves or pants. I haven't experienced this before and I guess I thought it would never happen to me ...Boy was I wrong! Do these symptoms sound like a possible flare? I have a call into my rheumie about possibly taking some prednisone.
it could be sun and flu, when i had my flu jab i stayed indoors and i was ok... mom had to stay away from grans cause she had the flu and she didnt want me getting it... i have roc sunblock which reminds me i need to get more.... and i always where pants and jumpers outside i hate the sun on my skin it feels like my skins cooking and i know how that feels cause i used to be a chef at collage till it got too much for me and i am no stuck at home... but do as the others say wear sun block, tops with sleeves and pants and stay in the shade... i sometimes have to walk outside in the sun with my brolly cause its too much for my skin... i get wierd looks but i dont care my skin and health comes frist...
When life is hard and you've no where to go to, Dont worry... Be Happy as it will get better ^_^
This is really interesting. Yesterday my partner said I looked like I had a sunburn - more so then normal. I walked the dogs and it was a bright sunny day - it's only April. Only my face was exposed - in that 1.5 hour walk (the puppies were not cooperating and didn't want to come home), it made my malar rash quite red. I've always avoided the sun in the summer, wear spf, but now I find that it's a year round thing. Very tired and achey today - however the puppies kept me up all night (they found a dead animal and were sick all night as a result) - so not sure if its that or the sun. I do believe if you have a sensitivity - any exposure to the sun can make things worse. Haven't been diagnosed, but based on everything I have, I believe its Lupus.