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Old 04-05-2009, 08:49 PM   #1
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Rash

Hi all, I am back again. Today I was sitting in the sun (nice warm day), had pants on. When I got home, I noticed my ENTIRE right thigh had a crazy red rash all over it like red circles (the size of a quarter). Not on the other thigh though. After being inside some, it went away.

Still thinking all of my odd sx may be AI. I took a pic to show to my dr..

 
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Old 04-10-2009, 03:25 PM   #2
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Re: Rash

Hi K2

I'm new to the message board and was just wondering how your skin is now.

I experienced the same circles you describe covering both thighs, buttocks, arms and chest at the end of 2007 and after constant visits to the dr with no diagnosis I requested a referral to see a private dr.

4 weeks ago I was diagnosed with Lupus!

Are you experiencing any other symptoms?

All the best.x

 
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Old 04-10-2009, 03:47 PM   #3
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Re: Rash

Well, I have had it only a couple times since I first noticed it last weekend. It seems to go away quite quick. My rheum said it is either a clotting issue or is associated to lupus.

What other symptoms do you have?

I have had mystery things going on for 9 months w out a dx as of yet...quick stabbing pains, burning nerve pains, muscle twitching all over, EXTREME joint cracking, pancreas inflammation (recent) etc etc...

How were you dxd?

 
Old 04-10-2009, 05:16 PM   #4
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Re: Rash

Hi. Are your circles hollow in middle, like little bullseyes? That describes the "middle look" of the lupus rashes I had 3-4 times yearly for many years.

Earliest look was red raised bumps, like big mosquito bites but not itchy. Then at year 3 or so, the tiny circles. For the last 4 years, I had the fully mature form: same little circles appeared but then quickly expanded to size of palm of my hand, then expanded further & lost perfect circularity. The final version lasted a month or more before fading, but didn't itch, scar, or depigment.

My rashes were almost all on upper arms/torso. A few times I got just the immature versions (red bumps & tiny circles) on upper thighs.

After MANY local dermies & other specialists (gastroenterologists, urologists, etc.), I saw a big-city teaching hospital rheumie & was also biopsied one last time by a dermatopathologist. Rash Dx: SCLE = subacute cutaneous lupus erythematosus, the annular (ringlike) form. (FYI, there's a 2nd form of SCLE rash called psoriasiform, that looks somewhat like psoriasis but isn't.)

By that time, I met 4+ of the 11 lupus diagnostic criteria. Overall Dx: SLE, but subacute (no major organ involvement). Was positive for anti-Ro, but stayed ANA-negative, which happens in maybe 30% of people with *only* SCLE-type rashes, I was told. Also was negative for antiphospholiid syndrome.

Plaquenil has helped a lot, but I have to avoid sun, wear block & hats, etc. Because people with SCLE rashes are eligible for the same range of problems seen in "classic" SLE, I'm monitored regularly: bloodwork, urinalysis, etc. Both drs. said people with Sjogren's syndrome also can get these SCLE rashes. Both warned I was also "eligible" for discoid (scarring) lesions (did get one my face) and for the malar butterfly (never got one of those).

Dr. Daniel Wallace describes both SCLE rashes in his lupus hardcover, which is in most libraries & bookstores. I hope this helps. Give a yell if you want to ask anything, OK? Good luck! With best wishes, Vee

 
Old 04-10-2009, 05:43 PM   #5
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Re: Rash

The rash literally looks like someone cast a net on my leg, so red and white in the middle. It goes away after being away from the heat/sun

My rheum said it is the livedo rash which is either from a blood clotting issue or lupus. So...this should would explain all my other symptoms

I did read this can be associated w pancreatitis but my GI said this is usually in acute cases vs mild (like mine)

 
Old 04-10-2009, 10:31 PM   #6
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Re: Rash

Hi, again. Now I know what you mean! Full name is "livedo reticularis". Looks like a bizarre reddish fishnet has taken up residence under your skin surface! (When I still did sun, I had it often, too. Startling...) I think it's a disruption of blood flow in tiny blood vessels, not really a "rash". I think it hardly ever needs treatment---and that *only* if it progresses to a form of vasculitis. You could ask your rheumie to describe what it looks & feels like if it's become dangerous. Take care! Bye, Vee

 
Old 04-10-2009, 10:34 PM   #7
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Re: Rash

Thanks V! I actually took a pic of it and brought it to her. So that is when she decided to run the lupus tests....It sure would make sense of all my undx and odd symptoms the past 9 months

 
Old 04-11-2009, 06:56 AM   #8
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Re: Rash

Hi. Try your library &/or bookstore for the standard lupus hardcovers written for patients & you'll probably find more info on livedo reticularis. I *think* it can affect people WITHOUT lupus &/or antiphospholipid syndrome, as well as people WITH either/both.

Did your rheumie also include tests for anticardiolipin antibody & lupus anticoagulant? FYI, that 2nd name is a misnomer. Both tests really have to do with antiphospholipid syndrome (APS). There's a "sticky post" (permanent info post) at the top of the thread list on APS... have you seen it?

I hope things become better soon for you. Stay in touch with all us, OK? Bye, V.

 
Old 04-13-2009, 08:37 AM   #9
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Re: Rash

Hi VeeJ & K2

Hope all is well with you both.

Thank you very much for the information.

I had the same raised bumps as you describe but they were itchy and caused the entire area to be inflamed. Once the swelling subsided they crusted over and bled then left scars which have not faded.

I also experience the twitching all over my body, hair loss, excruciating joint pain, headaches, itchy skin, memory loss, mood swings, constantly feel dehydrated and tired.

Positive RO Anti and the dr has prescribed Plaquenil.

Have you suffered any side effects from the drug?

Thanks again for info.

Stay well!x

Last edited by organichick; 04-13-2009 at 08:38 AM.

 
Old 04-13-2009, 12:52 PM   #10
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Re: Rash

Organichick, hi. In answer, I've really done very well w/Plaquenil. I've taken it for 9 yrs: started at 400 mg daily, then reduced about 16 months later to a maintenance dose = 200 mg. My chronic GI & urinary problems disappeared almost immediatly, as did horrific hedaches. B-12 & Folate levels returned to decent ranges. Tingly sensations stopped, too. Fatigue not nearly as bad or as frequent.

Hair: mine was in bad shape when I started Plaquenil: no bald spots, but breakage along front/sides of hairline, and on crown. Within first year, hair improved a lot, but I still get minor breakage occasionally.

Pain levels: have less day-to-day but still get some nasty bouts. I'm actually more barometrically reactive now than I was before. In addition to Plaquenil, I take OTC ibuprofen daily.

Bone density: that's improved, too. (I also take Fosamax.)

Sun: I learned quickly that even with block & hat, I simply can't "do" sun. Like you, I'm in the anti-Ro group. Some doctor/authors believe that those prone to SCLE-type rashes are apt to be extremely photosensitive.

Due to concern about retinal buildup (very rare), I have a field vision twice yearly. (Rheumie insists.) My vision has remained fine.

About your itchy, scabby, depigmenting rashes: Did your rheumie think these were the "psoriasifrom" type of SCLE lesions? (I had the annular = targetlike form of SCLE rash.) Or discoid lesions? Or even maybe psoriasis? (People with lupus can also get psoriasis, maybe even get it more often than normal people.) Or maybe even solar urticaria = sun-induced hives?

I hope your rheumie & you can get everything under control soon. Let us know how you're making out. Sending my best wishes, Vee (Watch that sun! Don't mean to nag, but I'm sure avoidance has been one big factor in my stability.)

 
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