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Old 04-12-2009, 01:12 PM   #1
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Can anyone help me with this?

I just got my bloodwork back and my sed rate is 30. Out of 11 years, my sed rate has always been around a 2 or a 4--very low. I have Chronic Fatigue Syndrome. Why would it be a 30?

CindyLou

 
Old 04-13-2009, 02:58 PM   #2
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Re: Can anyone help me with this?

CindyLou,
I'm not sure if your doctor has fully explained the test to you, but what happens is the test tube of your blood is monitored for an hour to see how quickly your red blood cells fall to the bottom. If the blood cells fall quickly, that means you have a high sed rate. If they fall slowly, you have a low sed rate. This test is used to measure the amount of inflammation you have. A high sed rate indicates a higher than normal amount of inflammation which could point to either a recent/current infection or an autoimmune disease. Did your doctor mention why he was running the test? My guess would be because he has an inclination that you may have an Autoimmune disease. I hope this was of some help. Have a great day!
-Erica

 
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Old 04-13-2009, 03:07 PM   #3
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Re: Can anyone help me with this?

I get my labwork done before I go to the Rheumatologist. My doctor faxes all the copies to him. That way when I go, he has all recent labs.

I've had CFS for 11 years but I've never had a sed rate like that. Is 30 high or not too bad?

My Rheumy already told me last year that the rash on my face and neck is a connective tissue rash.

CindyLou

 
Old 04-13-2009, 03:14 PM   #4
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Re: Can anyone help me with this?

A normal sed rate is considered to be between 10 and 20. So yes, your sed rate is high and warrants further investigation as to what's causing the sudden onset of excess inflammation, however a 30 is on the lower end of the spectrum, some people have sed rates of 130+
-Erica

 
Old 04-13-2009, 03:17 PM   #5
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Re: Can anyone help me with this?

I know that some people have very high sed rates. I know there's something not right because this is out of the ordinary for me.

Does Fibro cause a sed rate like that?

CindyLou

 
Old 04-13-2009, 03:26 PM   #6
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Re: Can anyone help me with this?

Fibro wouldn't cause your sed rate to be elevated. Fibro happens when the nervous system causes you to feel pain when you shouldn't and makes you excessively tender. In Fibro there isn't any inflammation to accompany the aches and pains. Has your rhemmy considered the possibility of lupus? I'm not a doctor obviously but considering your fatigue, rashes, and elevated sed rate it seems like it may be a likely possibility.
-Erica

 
Old 04-13-2009, 03:34 PM   #7
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Re: Can anyone help me with this?

I didn't know that fibro doesn't cause a high sed rate. I thought it did because there was pain. I learned something new. Thanks!!!

Sometimes I've been getting pain on top of my shoulder and I never had that before.

My doctor told me that my rash on my face and neck is pointing more towards Lupus rash. He said it doesn't look like rosacea. Plus it's smooth and there's no bumps. So I see him in about another week and we can go over this labwork.

I've been having another problem with neutrophils. I don't have enough. I can't get up to normal range. He's concerned about that. My ANA is 320.

CindyLou

 
Old 04-13-2009, 03:53 PM   #8
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Re: Can anyone help me with this?

The new pain in your shoulder is probably due to your new elevated sed rate. If there's inflammation it's usually always accompanied by pain. It sounds like your doctor knows what he's doing and I hope your appointment goes well
-Erica

 
Old 04-13-2009, 03:59 PM   #9
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Re: Can anyone help me with this?

When we have pain, does that mean that there would be inflammation or not necessarily? I hope my appt. goes well also. Thanks!

CindyLou

 
Old 04-13-2009, 04:12 PM   #10
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Re: Can anyone help me with this?

In most cases yes there is inflammation when there is pain. Inflammation is part of your bodies healing process. It's kind of like if you get a cut how it becomes red and swollen before it scabs and heals. The inflammation signals a response in your body to let cells travel to the area that needs to be healed. That's why in most cases you get pain, then your body inflames the area to signal it to be healed. They usually go hand in hand.
-Erica

 
Old 04-14-2009, 02:04 PM   #11
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Re: Can anyone help me with this?

CindyLou,
I forgot to ask you about your neutrophils. Has your doctor said whether or not you have neutropenia? I wasn't sure if you knew but people with an autoimmune disease can make specialized antibodies that destroy neutrophils. Did your neutrophil count drop suddenly or did it slowly drop over a period of time? Also have you had any unusual and frequent infections?
-Erica

 
Old 04-14-2009, 02:08 PM   #12
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Re: Can anyone help me with this?

Hi Erica,

Out of 11 years I have never had any infections. When I first got sick, I was diagnosed with neutropenia.

I also have leukopenia. Over the past year my neutrophils have dropped everytime I've gotten bloodwork. Sometimes in 3 months and others it would be 6 months.

CindyLou

 
Old 04-14-2009, 02:18 PM   #13
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Re: Can anyone help me with this?

Hi CindyLou,
Chronic neutropenia and leukopenia are often found in people with lupus. It is somewhat uncommon but there are many people with SLE that have those conditions. Maybe this will get you a step closer to a diagnosis. I sure hope so
-Erica

 
Old 04-14-2009, 02:35 PM   #14
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Re: Can anyone help me with this?

Hi Erica,

I've been seeing my rheumy for 4 years this month. I saw another rheumy 5 times and I quit going to him. First he said I had lupus and then another time he said I have Mixed Connective Tissue. I quit going.

But both times that I've had the testing done for lupus--the Sm and the anti-DNA have both been negative.

CindyLou

 
Old 04-14-2009, 02:47 PM   #15
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Re: Can anyone help me with this?

CindyLou,
There are people with lupus that don't test positive for it. There is no specific test that can say whether or not you have it. A positive result does help with the diagnosis but isn't a definitive answer. There are alot of people with positive results that don't have disease. When I first got sick my results were negative and the doctors chalked my symptoms up to several things(hypochondriac, chronic fatigue syndrome, fibromyalgia, MCTD, etc.) but when my symptoms began to worsen my test results came back positive and finally a lupus diagnosis was made. I know how difficult the process of finding a definitive diagnosis can be. I wish you all the best
-Erica

 
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