I have Lupus... anyone care to share - Lupus Message Board

Kathryn · 12-02-2000, 11:20 PM

I have had Lupus for about 20 or so years, but actually dx'd for 13 or so. I have lots of problems off and on related to Lupus. Would like to share with others how you handle your life.

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Tammy MN · 12-04-2000, 05:21 PM

I am one of those undiagnosed ones. but think for sure it is Lupus. I have had symptoms for about 10 years but just last year started hunting for the mysterious illness. after many attempts to convince me I just needed to see a psychiatrist a dermatologist was wise enough to take a biopsy of one of my rashes and came up a possible skin variant of Lupus (plaque-like mucinosis)but I have all the symptoms everyone talks about minus the joint pain. weakness and fatigue are the worst of my complaints. I did really well when they had me on 400mg of Plaquenil but she dropped me down to 200mg and I feel awful again. I just choose to do quiet small things that don't require alot of physical exertion and explain to the family that I don't feel good and hope they understand...but I still struggle with feeling guilty like I am being lazy or something but I swear my legs feel like noodles.

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Kathryn · 12-04-2000, 07:34 PM

Hi Tammy, I know how you feel as well. I havent' started getting achy fingers and joints until the last year or so. My Lupus has effected mostly my nervous system. I feel awfully tired and worn out a lot and have a hard time committing myself to anything ahead of time. Mostly because I can't follow through. I guess that's why I like Posting on Lupus forums so much. They are very forgiving.

Kathryn

Tammy MN · 12-06-2000, 06:48 AM

Kathryn what types of symptoms do you experience with nervous system involvement?

Kathryn · 12-06-2000, 08:30 AM

TammyMN... I'm sorry... I just posted a very large posting here and when I went to submit it it disappeared... and now I don't have time to repost. This has happened to me 3 times in the last few days.. I hate that.

I will retype it again in a bit and copy it first... grrrrrrrrrrrrrrrrrr