Your computer caught the virus too???? (haha) Hope your cold is better! I caught your cold virus last week-end too. I've been sucking on my 'cold eeze' faithfully. Mine has moved to my sinuses and I can't take any decongestant cause of the Raynauds.
I've been having a lot of pain and heaviness in my legs, not joint pain. Does that sound familiar to anyone? Also, my wrists and hands were much worse. I'm beginning to think that it has nothing to do with the Raynauds, RA, or Lupus. I think maybe I need to have them do some tests to see if the carpal t. has damaged a nerve. I heard those are a lot of fun.....they give you shocks and needle insertions from your wrist to your elbow. I declare this whiney (sp?) Sunday!!
One good piece of news....I was on the waiting list at the Mayo Clinic and they called and gave me an appt. for May 1st. Kind of scary too though. I'll pass on all the newest, most effective treatment modes to you guys so you can make requests of your drs. Have a balmy day....the sun is shining in the front yard and I can't tell if it is in the back, cause my 7ft. snow drifts are still blocking my view. Take care, Ann
The majority of my leg pain seems to be a dull, heavy ache in the bone (front of the leg, below the knee). I don't know if this sounds similar to what you are experiencing. It's worse when I wake up (my ribs also feel bruised or sore when I first get up, along with extreme pain in my lower back), but then gets better for a while, then starts hurting as the day progresses. I've tried everything to relieve the pain in my legs, including exercise specifically targetted to the legs, walking, different shoes, sleeping in a different position. Sometimes the pain becomes so unbearable (usually towards the end of the days) that I have to lay down. I don't know what this is related to since the doctors are still performing tests to see whats wrong with me.
[This message has been edited by Ready (edited 03-20-2001).]
Hello- back again,
Explore fibromyalgia on the leg pain. I have had 3 bouts of trochanteric bursitis since being diagnosed. It mimics joint pain, but it's a totally different thing than lupus pain. Since the lupus is beginning to come under control by methotrexate, I am experiencing a whole new set of pain- from the FM. I feel more flu-like and the FM is worse on rising and in the evening from what I've read and personal experience. My rheumie ssays SLEEP is the #1 way to control FM and I never seem to get enough- my fault in poor prioritizing.
Anne and Ready- thanks for keeping us going.
Ready: Yea!!!!!!!!!! we have an "in" on the latest with your Mayo info! Networking really helps keep us up on these diseases, cause we have a life to carry on- above and beyond the effect of the conditions.
Ann- I have the same heaviness, I am attributing it all to FM, altho when I awaken after a pretty good sleep, I am still sore and stiff. It gets better faster, tho, if I HAD a good sleep. No real work-around and I don't see my doc until the 2nd of Apri.
Hugs all around
Jeri
It sounds like we all have 3 different types of leg pain. Jeri, for the FM, I know there aren't any specific blood tests or whatever, but did your Dr. put pressure on certain places on your body to make the dx.?
Also, I seem to be so much better this week(except hands), is it possible that the plaquenil could work in a few days? I know they say it takes from 6 wks. to 3 months.
Have to get back to work, I'll check with you guys from home if I can. Have a sunny day, Ann
Hi Ann,
The plaquenil began working, I swear, within days and began to gave me the first relief I'd had in months.
The doc has added methotrexate to the plaquenil, cause the plaquenil-alone worked great for about 2 months, and pretty-good for another 2 and then it started to be less-than -what I needed. I have been on methotrexate about 6 wks now- I've lost count and I believe that it's working cause I am reducing my prednisone at the same time and the symptoms that I am experiencing are brand-new- most of them FM symptoms. That a new scene cause I just found out I had FM along with the other stuff. The joint pain and overwhelming fatigue masked any other pain that I was having. Nothing is helping the brain-fog that if affecting my typing.
:-)
Hope you gals had a good day today. I shoped with husband and oldest daughter and 2 grand daughters and bought a doll house for all of us to play with. Off to a new Bible study tonight with friends and family. I LOVE my Wednesdays off- I find I have trouble working more'n 2 days straight cause my schedule is so goofy. The mid-week break is refreshing to body, mind and soul.
Here's hoping y'all will have a quiet evening.
Jeri
Jeri & all 
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