NEEDEDING HELP - Lupus Message Board

jane36 · 06-13-2001, 06:25 PM

I have postive ana but a net dna but have all the joint paines and hight fevers that come out of no where im only 37
been this way after i had my baby at 29 she nine now
now they did a stris test one line goes down and i have a low heart rate and bllod persher

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Janice

SailormoonK · 06-13-2001, 07:19 PM

Best advice i can give you is find a good rhuemetologist. i am 23 been sick 6+ years, and just now am learning to listen to my body not the doctors. ask them what is happening and for a referal to a specialist. women can easily be dismissed as depressed or having mental problems. so it is up to you to make sure you get treated and tested properly. all i can say is i will pray that the problems are something other than lupus. usually it takes 4 of 11 criteria to get diagnosed and the ANA is a big diagnosis thing- that is why i hav ebeen sick so long w/o treatment my ANA has been negative and my regular doctor called it depression because my ANA was neg. i hope you have better luck than i. get tested for all the arthritis problems you can and have the labs run at least 1 more time, sometimes test results change. but trust your body and remember a rhuemetologist is a lupus patient's best friend.

jane36 · 06-17-2001, 05:57 PM

Thank you my ANA has been poative sence 1989
i get a blood test done every year
its a little higher every time I take voxx for the joints i have a lot of swelling on my right side you can tellwhen im in flamed my face is red and my jonits are red and hot i get a lot of headacks im boader line diebetic had lost three baby but my Dna is neg but my heart stress test is showing one line going down now now they are saying i have fibermalga to

vamp · 07-27-2001, 01:10 PM

I don't know if this helps, but I've done a ton of research and from what I've seen, pregnancy almost always makes lupus worse because there is a level of hormone involvement in lupus (which is why it's mostly women who get it to begin with.). But you should have an antiphospholid blood test done (I think that's what it's called), because the miscarriages can be prevented to some extent with, I think, the use of baby aspirin or certain drugs.

Prayer · 07-27-2001, 04:00 PM

Hi.. Im new here, but thought I might be helpfull from time to time..My 17 yr old daughter has had lupus for 3 years now, and we have run the gambit.. I have read TONS of things, researched tons of things and am on a question board on the net about lupus....
So.. Hi!

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God Bless Rebecca