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Old 06-27-2002, 11:54 AM   #1
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Red face should I be worried?

I went to the doctor a couple of weeks ago and she ran several tests due to me not feeling well. She called me back a week later and told me my ANA came back positive and she was referring me to a rheumatologist. She did not tell me anything else. I called to make an appointment but he could not get me in until July 30. That is a month away and I don't know what to think. Can some one please shed some light.

 
Old 06-27-2002, 02:30 PM   #2
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Call your doctor back and find out what the titer of your ana was and what the pattern was. Also find out if any other tests came back positive. Usually if someone has a positive ANA other tests will be run. You need more info. Post again when you get the results. Susan

 
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Old 06-27-2002, 02:58 PM   #3
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Angry

I spoke with my doctor and she told me at this time the only test she took was an Inflammatory profile and my titer was 1-320 and my pattern was homogenious I asked her was other test came back positive and she told me my c-reactive protein was 0.85 and everything else on my inflammatory profile came back normal that she wants to take precaustions and for me to just wait until i see the rheumatologist but would not say if it was bad or not. What do you think? Should i worry or not?

 
Old 06-28-2002, 09:37 AM   #4
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First let me say I'm not a doc, just someone who has had autoimmune problems. An ana of 1:320 is clinically significant but not a really high reading. ANA titers go up quickly because they represent dilutions. They double each time they increase--do a google search or other web search and you can read a lot about ana titers and the possible meaning of your other positive lab result.The pattern of your ana is the most common pattern and you can read more about the meaning of pattern types too. A positive ana can be caused by a variety of conditions. I'm surprised your doc has not ordered more tests. Further testing would help to understand what is causing your ana to be positive. THe rheumy will undoubtedly order more tests, and you will just have to wait longer, while your regular doc could order more blood work now and save some time. Best wishes-I would try not to worry but continue to look for answers. By the way how have you been feeling?

 
Old 06-28-2002, 09:47 AM   #5
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Unhappy

I will try not to worry. My doctor tells me not to that she does not want to do anything just to wait for the rheumy to do more tests. I feel like i am loosing my mind. I was in the store yesterday and i started crying because i forgot where the rice was and i go to that same store everyday. I am out of breath no matter what i do. My legs and back ache all the time. My hair is falling out. My jaw and head hurt all the time. All i want to do is sleep all the time and it is hard for me to get out of bed because i hurt so bad. I cannot sit for long periods of time because my body hurts all the time. I feel horrible. Sorry for complaining, but thanks for asking. How do you feel and what is there for me to do until i see the rheumy.

 
Old 06-29-2002, 01:10 PM   #6
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There are a number of things that could be going on that are not lupus. I went to see a rheumatologist and found out I have something called myofascial pain syndrome. Some people have fibromyalgia. Others have other things. It's impossible to tell what it is until you see a rheumatologist. He or she will likely be able to tell you right away... although they would run more blood work to be sure. My rheumy said he wasn't going to run more tests because my ANA was only 'borderline' elevated, but I demanded he do the rest and I found out I don't have lupus. Anyway, regardless of what it is, you are not alone and many people have waited it out the way you are. I know this doesn't make it any easier, but we just need to be strong and realize there are people out there who will help us. Many regular doctors aren't well versed in things like lupus, fibromyalgia, myofascial pain, etc., so maybe that's why they told you to wait.

 
Old 06-29-2002, 07:12 PM   #7
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Sorry to hear that you are feeling bad. Try to take care of yourself as best as you can until you see the specialist. If you are tired take a nap if you can, did your doc suggest anything for your pain? Maybe over the counder anti-inflammatory med or aspirin or something. I think the c-reactive protein test that you mentioned measures general inflammation in the body. If things get worse while you are waiting to see the specialist, by all means, get back in touch with your doctor. Don't worry too much about the hair loss. A lot of us have experienced that and still have hair. Use the board to vent if it helps. Susan

 
Old 07-01-2002, 06:32 AM   #8
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Thanks to both of you. I spoke with a friend this weekend who gave me some advise on somethings i can take until i see the rheumy. I live on asprin. It helps sometimes. I feel better today, but i had a really bad weekend. It helps to know that there are people out there that know what i am going through. Also to know i can converse with them, and that they can help in some situations that i am going through know that they have already been through. Thank you very much. On the hair thing i am just glad i had really thick hair. thank you. Krittany.

 
Old 07-01-2002, 06:37 PM   #9
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Krit -
Use the time you have before your appointment to create a diary for your Rheumy. Detail how you feel, any symptoms, activity level, any illnesses you have had. Also, get a copy of your medical chart from your PCP. Keep a copy for yourself - and ask for copies of all tests for your records as well. It makes it easier to relay information between doctors.

Read up on the different automimmune disorders. See which ones "sound" like you. Write down your questions - sometimes we get rushed and overwhelmed by the doctor - that way you can make sure you cover everything.

Don't stress - it's the WORST thing you can do. There is NOTHING you can do to change the course of the disease except take care of yourself. Some things are out of your control. The heavens don't open up and angels don't sing when you get a diagnosis. It's rather anticlimatic. You have to jump thru a lot of hoops.

And, when you see the Rheumy, and he/she starts whipping out perscriptions left and right - question him/her on them - why? what to expect? are there other options? why THAT particular drug? Don't blindly accept whatever they throw at you. If you do have an autoimmune disorder, it's essential to have a strong working relationship with your doctors - sometimes it may mean jumping up and down and having an occasional hissy fit, but sometimes it takes those kinds of actions to get stuff done.

Good luck, and keep us posted!

 
Old 07-02-2002, 06:30 AM   #10
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I will and thank you for the advise. I need all i can get at this point. I just leave it in the hands of the lord and pray that he will be with me for what he has in store for me. It helps that you have given me advise to. Thank you alot. Krittany

 
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