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Old 04-29-2002, 11:30 AM   #1
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CAN SOMEONE PLEASE TELL ME WHAT AN ELEVATED FANA TEST CAN MEAN? MY OTHER LABS CAME BACK OK. MY FANA WAS DOUBLE THE NORMAL. IT SEEMS LIKE NO MATTER WHEN I GET TESTS BACK ALWAYS 1 OR MORE ABNORMALTY. I HAVE LUPUS ANTIBODIES. 2 POSSITVE TESTS. ALSO MS AND POLYCYSTIC OVARIAN SYNDROM. PLUS INSULIN RESISTENCE. AHHHHHHH
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Old 04-29-2002, 04:38 PM   #2
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McNeal -
I have SLE and PCOS as well. I think you are asking about your ANA results.

Antinuclear antibodies (ANA) are a type of abnormal antibody that can indicate the presence of an autoimmune disease (such as systemic lupus erythematosus or rheumatoid arthritis). However, an ANA test alone cannot diagnose a specific disease. A thorough medical history, physical exam, and other tests are needed confirm a suspected autoimmune disease.

These results should be discussed with your doctor. I recommend seeing a Rheumatologist to explore your autoimmune problems and a Reproductive Endocrinologist for your PCOS. The doctors need to be aware of each other and your Rheumy needs to "be on board" with the PCOS diagnosis. (Not all doctors believe in it). You need to be on the lowest dosage of BC pills possible that will work for you because the hormones can lead to flares. It's a delicate balance that needs to be coordinated between the docs and it helps if they will stay in communication with each other.

Have you tried a low-carb diet to help with the PCOS? It made such a difference for me. I do a "modified Atkins" with emphasis on olive oil and salmon over butter and bacon. I also gave up all caffeine, artificial sweetners and sodas.

There's so much more I could tell you but I don't want to overload you in one email.

Good luck!

 
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Old 04-30-2002, 06:34 AM   #3
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Thank you for the info. The doctor said fana test floresent anti-neuclear antibodies???? is this the same as ana? I have seen a reproductive specialist who diagnosed with the pcos. We have decided to give up trying to conceive due to 2 miscarriages and now my diagnosis with multiple sclerosis. So now I am off to see an endocrinologist in may. I have to go 4 hours to minneapolis. Have you any experience with metformin? I think I will give this a try. Now to see a rheumatolist will I need a referral? I hate when doctors blow off abnormal blood work. I have had increased liver function test... no biggy... to them maybe!!
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Old 04-30-2002, 07:35 PM   #4
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Saw your post just now, and wanted to respond to your decision to stop trying to conceive. Just wanted to say that I suffered from infertility for years, and went through a lot of emotional suffering during that time. During those years I started having health problems and my doctor said maybe MS, Lupus, Lyme Disease etc. I also had a friend who had "probable MS" and she suffered repeat miscarriages-one baby died when she was over 5 months into her pregnancy. She stopped trying and asked me if I would continue trying even if I knew I would get sicker as the result of my pregnancy. I had one child already, and my response was absolutely yes. I did eventually get pregnant (I had very high antiphospholipid antibodies-associated with miscarriage) and was treated with baby aspirin. Also had multiple ovarian cysts that had to be treated with surgery and needle aspiration, and endometriosis that was treated with surgery and depot lupron. To make a long story short-I did eventually get pregnant, and I got the sickest I have ever been 3 months postpartem. My health has never been as good as it was prior to that pregnancy, but I don't regret it. Maybe it would have declined anyway. But I'm ok regardless. Sometimes when I have felt especially bad I remember what that friend asked me so long ago, and I still feel I made the right decision for me. She chose never to try again, I know she was afraid that she was going to get sick, and her neurologist told her not to live her life in fear of that, but she made the decision that was right for her. Whatever your path, best wishes, Susan

[This message has been edited by SusanM (edited 04-30-2002).]

 
Old 05-01-2002, 06:49 AM   #5
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that you for the reply. I actually didn't quit trying to concieve due to being afraid I would be sick. I was afraid of not being able to care for another child. I have a 4 year old now and the fatigue I have is so bad. I don't want to put all the stress on my husband. And the miscarriages are so heartbreaking. My future is so unpredictable and I keep having relapses from my ms. We have put alot of thought into our decision. It is the hardest decision I ever made. I know deep in my heart it is the right one for everybody. Thank you for your encouragement.
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Old 05-01-2002, 06:05 PM   #6
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McNeal -
If your insurance req'd a referral for other specialists - like the endocrinologist, then you'll need one for the Rheumy. Do some checking around - a good rheumy and a good relationship with the rheumy is ESSENTIAL. You can check with the local arthritis or lupus foundation for some referrals. And I'd ask each doctor if they focus on Arthritis or Lupus - some specialize - and you want one that focuses on Lupus not osteoarthritis!

I agree with Susan - don't necessarily give up on the conceiving. I'd focus right now on getting everything under control for now and getting your energy back. (Water aerobics/exercises classes are great for helping!)

I went on Glucophage about 3 months ago - it's something to definitely try but the more important thing is to get on birth control pills for now. I am such an advocate for doing the diet modification too - I used to live on low-fat/low calorie meals that had lots of pasta/grains - and kept gaining weight and feeling like crap. I still have cravings every once and a while, but since I've given up the flour/sugar products, I feel SO much better - and the weight dropped off. Give it a shot - talk to your endocrinologist about it.

If there's anything else I can do - just let me know. I know how overwhelming it must feel right now - but things do get better with the right medical support!

 
Old 05-09-2002, 08:29 PM   #7
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Mcneal,
I have a list of Mayo trained Drs. that are in the Minneapolis area. Doesn't guarantee that they are good, but it should be better than a shot in the dark. I'm not sure if I'm allowed to post it, but if you're interested I'll give it a try. Ann

 
Old 07-07-2002, 04:56 PM   #8
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I was told I would be unable to conceive. I have a 3 year old son now, but only due to taking Rezulin. The Rezulin allowed my ovaries to produce eggs normally, and put the PCOS and my lupus in to remission long enough to have a child. Since then I was pregnant once and miscarried, I believe due to the fact that I was not taking Rezulin the second time I concieved. Rezulin has been taken off the market due to deadly effects, but it has two sister drugs that do not have the side effect but work the same way. You might ask your dr. for one of those. I went to an endocrinologist to get Rezulin, they would probably have the other two drugs as well.

 
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