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Old 07-06-2002, 11:58 PM   #1
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Join Date: Jul 2002
Location: MI, USA
Posts: 6
Jesp HB User
Post Lupus Antibody

I have been Dxd with Lupus Antibody (a.k.a. Antiphospholipid Anti-body Syndrome, Hughes Syndrome, Sticky-blood), though told that I don't have Lupus. I have now had 4 incidents of having blood clots in my legs that have gone to my lungs. There are lots of additional symptoms including persistant headache, reproductive problems, joint pain, Irritable Bowel, GERD, just to name a few. I have read some of the posts and noticed that the tingling/ swelling of hands, feet, and face seems to be common (and the docs just tell me to lose weight) as well as light sensitivity. I am wondering if anyone else was formerly diagnosed with APLS and then found out it was Lupus? I feel like I am going crazy trying to figure out how I can lose wieght, eat healthy, exercise, and keep my blood levels where they need to be when it hurts so much to walk (swelling, chronic fatigue) and I can't eat things with vitaminK (most vegatables and fat-free foods :-( ) Does anyone out there know of any good support groups for this disease? I know I'm not alone, but sometimes it sure feels like a 1-woman losing battle!

 
Old 07-09-2002, 11:24 AM   #2
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Join Date: Jun 2002
Location: Hollywood, Maryland USA
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Wow, I have had tingling and the specific sensativities that I have to foods, especially to gluten type foods are very toxic to my system. I have to follow diets that are high in protein but also high in fat. This has boosted my cholesterol levels unfortunately. I have never heard of APLS but I know someone who may have. I will ask and hopefully get back to you once I receive feedback. - meanwhile... good luck!

 
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