 Lupus Antibody
I have been Dxd with Lupus Antibody (a.k.a. Antiphospholipid Anti-body Syndrome, Hughes Syndrome, Sticky-blood), though told that I don't have Lupus. I have now had 4 incidents of having blood clots in my legs that have gone to my lungs. There are lots of additional symptoms including persistant headache, reproductive problems, joint pain, Irritable Bowel, GERD, just to name a few. I have read some of the posts and noticed that the tingling/ swelling of hands, feet, and face seems to be common (and the docs just tell me to lose weight) as well as light sensitivity. I am wondering if anyone else was formerly diagnosed with APLS and then found out it was Lupus? I feel like I am going crazy trying to figure out how I can lose wieght, eat healthy, exercise, and keep my blood levels where they need to be when it hurts so much to walk (swelling, chronic fatigue) and I can't eat things with vitaminK (most vegatables and fat-free foods :-( ) Does anyone out there know of any good support groups for this disease? I know I'm not alone, but sometimes it sure feels like a 1-woman losing battle!
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