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Old 04-24-2009, 07:52 AM   #1
Join Date: Apr 2009
Location: Marion, In. USA
Posts: 4
Bfones HB User
Help! I am very new to this!

I am just starting the process of diagnosis. All I know is that I've been sick for 5 years and have gotten the run around like most of you. I had an ANA test done four years ago and the titer was 1:80 so no one pursued it. Since then, I have become anemic and just had another ANA and the titer is now 1:640. I have some skin issues but not alot. Just a general flu-like feeling, headaches, creepy crawlies, chills and so on. I do have a gland on my neck that swells and hurts off and on.
I have an appt. with a Rheumy next Wed.

Any thoughts?


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Old 04-24-2009, 11:35 AM   #2
Senior Member
Join Date: Apr 2009
Location: Johannesburg
Posts: 221
Angel MJ HB User
Re: Help! I am very new to this!

i think the worst part about being sick is not having answers ... if it has a name then there are ways forward ... i was 'lucky' to have been dx quickly ... i have had the symptoms for years but going to different doctors never helped nail down SLE ... eventually i got pericarditis (heart lining inflamation) and tested positive (ANA 1:640 & double strand dna)

3% of lupus patients will always have a negative ANA (according to Dr Daniel Wallace) so it is quite common for the levels to change especially higher at times of flares or lupus activity ...
my best friend has become reasearching ... books, internet, anywhere ...
Hang in there and although scary you are definitely not alone ...
PS good luck with the rheumie and look on some 'lupus' sites re: how to prepare for a doctors appt. i found the advice invaluable as i am now having to change doctors for a while ... keep posting!

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