Kathy, hi. I think you can see that as patients, we differ quite a bit. I'm in the anti-Ro group, which is believed by some drs. to be particularly photosensitive. So I waited several yrs. before trying: went kayaking. BAD CHOICE! Got prominent scarring lesion on nose, surprising me, as I'd only ever had non-scarring SCLE lesions on torso/arms.
My rheumie & dermie had both warned me that "rashes can cross subsets". For example, people with SLE or the SCLE variant, who've never had scarring lesions, are nonetheless "eligible" for scarring lesions. While only a few will actually get them, knowing you *might* should make you cautious. And that's only the SKIN aspect: since UV rays can foment overall flares, you don't want other worse symptoms than skin to flare.
Looking back, I should have ventured out more gradually, avoided water at first (it reflects UV rays), and chosen a site where I had a 100% fallback (like INSIDE
). If your dr. says it's OK to try shade, I still think it's wise to "make haste slowly". GOOD LUCK! from Vee