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Old 09-30-2002, 09:33 AM   #1
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Join Date: Aug 2002
Location: canada
Posts: 6
angela12ca HB User
Post seen my rhemy and diagnosed

Hi,
I am fairly new to this board as i have been reading the posts for a few months. I had my 1st rhemy apt last week and after only 1 yr of symptoms have been diagnosed with SLE. Im a 32 yr old female with 2 children ages 5 and 18mos. Just want to introduce myself and say hello and I hope i can be of some support/ help to those that post. Any of you that have not yet been diagnosed, donot give up, be persistent, get bld work done regularly and keep copies. i never would have been diagnosed or not so quickly if I had not perservered.
Angela

 
Old 09-30-2002, 10:13 AM   #2
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Join Date: Sep 2002
Posts: 20
LeslieAnn HB User
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Hi Angela! I've been newly diagnosed also. I, too, was soooo lucky to have a good family dr. who recognized that I needed to see a rheumy. I was diagnosed within a few months of symptoms. I'm 41 years old, married to a wonderful, supportive husband for almost 18 years, no children. I'm glad to see that we are somewhat "newbies" to this whole situation. Were you diagnosed with systemic. I was. I'm lucky to have just had fatigue and muscle soreness. I've been on Plaquenil for about 6 months now and seem to be responding very well. How about you?

I don't want to make this a novel, so I'll sign off for now. Just wanted to say "Hi" and let's all hang in there together!!


 
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Old 10-21-2002, 09:10 AM   #3
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Join Date: Jul 2001
Location: McCalla, Al USA
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em's mom HB User
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Hi guys, I have not been diagnosed yet but am waiting for my first rheumy appointment scheduled for November 18th. After two miscarriages, my OB/GYN ran some blood tests of which several tests came back borderline or abnormal.

Among those were prolonged APTT (borderline), ANA (borderline 1:80) and anticardiolipin (high). Can anyone give any insight on what their initial lab values were or if these seem to indicate lupus? Thanks for your input!
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Em's Mom

 
Old 10-21-2002, 10:42 AM   #4
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Join Date: Sep 2002
Posts: 20
LeslieAnn HB User
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Hi! I, too, have been recently diagnosed with SLE. My bloodwork sounds VERY similar to yours (my ANA is 1:80 and I also have very high anticardiolipins). So far I have been VERY lucky. I've been on Plaquenil for the last 6 months and I also take a daily baby aspirin for the risk of blood clots. I have responded EXTREMELY well to the Plaquenil. I have very little fatigue. I have been to three rheumies and they all were in agreement that at this point, it looks like the SLE is on the mild side. Hang in there and good luck with your appt. Maybe this could be the cause of your miscarriages. Keep us posted on how things go! and I'll be thinking of you!!!

 
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