scbagrrrl - red pepper flakes - Lupus Message Board

Ann S · 10-24-2002, 07:33 PM

I just saw your mention about spicey foods and red pepper flakes in another post. I have severe Raynauds and for me in MN 'the season' has come early. Coldest Oct. on record here since 1917. Anyway, I also have irritable bowel syn. so the spicey foods are out (at least on a regular basis, I binge and suffer once in a while). Anyway, do the red pepper flake capsules bother the stomach too? I've tried 2 prescription meds and neither helped.
Thanks, Ann

Ceya · 10-27-2002, 12:15 PM

Hi Ann,
I really do not know much about the red pepper flakes but I to have irratable bowel syndrom. Does this have anything to do with lupus?
How do you get along when it is cold? I have very mild weather hear and when it got to 56 and 64 degress I was old, but today we are back up to 78. Never adjusted. I think I would love snow we rarely have any here. Must be beautiful at Christmas. Please over look spelling.
Ceya

Ann S · 10-27-2002, 06:47 PM

Hi Ceya,
scbagrrrl mentioned the pepper flakes in another post and that it helps the Reynauds. I'm not sure if IBS is related to the Lupus or not. I have had IBS for many years before I was dx with all these autoimmune disorders. I didn't know there was a relation, but so many people with AI diseases, not just Lupus ones, seem to have it too.

As for the Raynauds in MN........ it's tough. I have to have my car warmed for about 15 min. before I go anywhere. I have to often park my car in handicap parking cause I have to come out and start it and run back in the store while it warms up (It makes it extra tough when you're so fatigued from all the other stuff). Just walking a very short distance can turn them white and painful. I am no longer able to enjoy any of the fun things that come with snow....... making angels, playing pie with the kids, snowmobiling, ice skating, etc. I've become very paranoid about driving in winter, for fear if I go off the road (easy to do with ice & snow), or have car trouble, I might end up having my feet & hands amputated. It may sound like a lot of negative thinking, but very realistic around here in winter. The winters have always been a bit too long, but now it seems forever. Sorry about the whining.

I read one of your other posts when you were talking about symptoms. So many of these diseases have overlapping symptoms. One of the other ones I have is Rheumatoid Arthritis, but not even the Rheumy can tell me if my joint pain is from the RA or the Lupus. He did rule out fibro in my case by testing the pressure points. Did you mention lessions? If it was you, could you describe them? I also have very itchy spots on my skin too, but no burning. My skin is very dry and doesn't heal worth a hoot......... lupus, scherloderma (?). Who knows. It seems it doesn't really matter too much what it's from cause they prescribe the same treatment for most of these diseases anyway. Take care, Ann

[This message has been edited by Ann S (edited 10-27-2002).]

Ceya · 10-28-2002, 02:05 PM

I understand , I to was whiny last week. I have similar reduction in activities. I use to swim with my children I grew up swimming since I was two. To me the water is cold. My kids son't think so but it seems to hurt to the bone to me. I use to go out and play baseball as a family but this summer I had alot of pain in my hands and wrist. And run LOL. It is so hard for me not to do these things. There are times I can not pick up my cast iron pots from the cabinet I have to get one of my kids to put them on the stove. I do get some energy on some days, but still can't lift. I do not want to give in, i do not think I can my family depends on me the most. I have very ichey skin to. Sometimes it drives me crazy but you really can't see anything wrong some times a little red. I have order the royle jelly from the Bee Alive company they have a web sight to try and get more energy. I think it does help if I take it consistantly. I have read where people have moved due to cold weather. I told you how it cold to me hear at 61 last week well now we are back in the 80s. you get up and it si about 65 and some days it will be 87 by 4:00 in the afternoon. I guess the warm is better for me. Than cold. I am sorry that your limitations are growing but I most say you have them covered. Thanks For talking I think sometimes I am selfish for feeling sorry for my self and I try to keep it to my self.
Ceya

Ceya · 10-28-2002, 06:42 PM

how did you first know you had Rynaulds (sp?)
What were your first symptoms?
Ceya