| | Ceya, are you still out there?
Sorry about not answering back again on the post in late Oct. You asked about flares and what Dr. to see when. I have no clue either, sorry. For me, the symptoms are fairly constant. Once in a while, they're extra bad......... is that a flare? I don't think so. When I hear people talking about their "flares", I get the feeling that they're not feeling too bad in between.
My experience with Rheumy's and Drs. in general hasn't been very helpful. The Rheumy sits and writes down all the complaints and that's it. He doesn't tell why they're happening, if it's normal progression, or anything........ He refers me to other Drs. whenever possible. You'd think with all the similar problems autoimmune people have that he could handle some of these without pushing you off. Who's got the time and energy to go to '15' doctors all the time? I can't look around for a better one either - it took me 6 months (and a 2hr. drive one way) to get in to see this one. Next place to locate one is 3hrs. away. Just saw him yesterday and now I'm supposed to go see a podiatrist and a hand dr. according to his reccomendations.
Anyway, I've just come to expect the unexpected. With time, you learn to predict some outcomes of some behavior (i.e.always major pain from vacuuming), but most of the time my body can react several different ways to the same thing. What's extremely hard for me is when I come to accept it, and get my pain tolerance built up to the level needed, ......... then ZAP!! something new happens or gets diagnosed and I fall all the way back down that awful steep hill again.
I also know what you mean about talking about it. A person at work, broke her wrist, which is not fun, but.......... I'm so tired of hearing about all the pain and all the ' oh poor so and so's' from the other workers. That sounds insensitive, but I think most of you understand where I'm coming from. I agree, our disease is invisible and so is our pain and anquish, etc., etc. It's expecially difficult to cope when I'm really run down and tired and I see my co-worker always playing on the computer, while I'm doing the work. My tongue really gets sore from biting it soooo hard.
Now I'm the one that needs to apologize for all the whining, but I just can't seem to accept my limitations and cut back when it comes to Christmas and I'm hurting and feeling a lot of self pity and resentment. Please bear with me, I'll lighten up soon .......Ann