| | Many unanswered questions
I am very confused and need some help from some of you Lupus veterans. My dad's wife had been diagnosed with SLE before he met her. She has been very private and secretive about her condition and treament, works very hard, long hours and keeps a positive attitude about her condition. All we know is that she was diagnosed over 10 years ago and was told if she ever went out of remission again she would not survive. She is now out of remission and does not expect to live much longer. We know nothing about her organs being damaged other than she has had problems with her kidneys recently and has suffered severe anxiety attacks. This is such a mysterious disease and we are all in the dark about it. I have read several posts and it seems some people live for years with this disease. She is only 44 and I am having a hard time grasping that she may not be with us much longer. Can anyone shed any light on this condition and what may be going on??