Ceya

Hi,
I would love to talk. I have only been dx recently. Been sick for about a year. You probably have alot of experience with this desease. I understand it must be even more difficult for you. It is rare for men to have lupus. The one thing in common for sure is that it is invisible and people do not want to accept that we are sick. I feel like most of the time I am ignored even if I mention my illness to amyone even family. It is like they feel so much worse with what ever they have. So I just don't say much. I have found myself staying home more when I am not running my kids around or working. I use to go see my mom everyday. She has back problems and for years she has complained about the pain. anytime I say something about my self she always as a comment that sounds like she is worse. Oh well what can I say. My husband was in a car accident 2 years ago and has had two surgeries. Nov. was the most recent and he is still recoving. I the beginning of my illnes I think due to his pain mine couldn' be that bad, mainly because I have to keep going. I am the only on working and so far God has helped me get to work and do an OK job. We have 5 children and sometimes working and taking them to activites is really tiring. How do you feel? What concerns you the most about your desase? Love to hear from you.