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Old 01-12-2003, 06:06 PM   #1
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Join Date: Dec 2002
Location: CALIFORNIA
Posts: 42
MAN WITH LUPUS HB User
Unhappy SHARE YOUR EXPERIENCE'S ABOUT LUPUS

I HAVE BEEN USING THIS MESSAGE BOARD FOR A LITTLE WHILE. I FIND THAT ITS REAL HELPFUL TO THOSE THAT ARE JUST BEING DX WITH LUPUS. BUT I SEE NO ONE HARDLY SHARE ANY INFO ITS DIFFERENT FOR EVERY ON MEN AND WOMEN ALSO DIFFERENT DR'S IN DIFFERENT STATES AND COUNTRIES. WHY DOESN'T ANY ONE SHARE OR TALK ABOUT NEW THING OR HOW YOUR DOING I FIND OTHERS ARE INTERESTED IN THESE THINGS. I MY SELF DEVOTE TIME TO CHILRENS HOSPITOL IN HOLLYWOOD CA, AND TALK AND SHARE WITH KIDS AND OTHERS SO THEY DON'T FEEL ALONE. WITH WHAT EVER IS AILING THEM IT HELPS PEOPLE FEEL NOT ALONE AND WANTED ALSO CARED FOR THIS LUPUS CAN BE LONLY SOMETIME IF YOU DON'T HAVE ANOTHER OUTLET. I ALSO AM INVOLVED IN WALKATHONS FOR VARIOUS CAUSES TO HELP OTHERS SO IT NOT ALWAYS JUST ABOUT ME.

I DON'T NO IF YOU GET WERE IM COMING FROM YOU HAVE TO TALK MORE JUST DON'T READ THE POSTS GET INVOLVED REPLY. THATS WHY PEOPLE ARE ON THIS BOARD OPEN YOUR HEARTS AND YOUR MINDS TO NEW IDEAS AND WHAT EVER IS GOING ON IN YOUR LIFE WITH LUPUS. OR WITH SOME ONE ONE YOU KNOW WITH LUPUS. WE CAN LEARN FROM ONE ANOTHER AND HELP WITH THE BURDEN OF CARING THIS WEIGHT ON OUR SHOLDERS.

THANK YOU FOR LISTENING IF YOU DID AND FOR YOUR REPLY IF YOU DID SO.

SAL



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SAL
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Old 01-14-2003, 10:57 AM   #2
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Join Date: May 2002
Location: Ohio
Posts: 222
Denise F HB User
Post

Sorry, Sal. Don't know what you mean? I see plenty of
sharing going on in this forum. I find it very helpfull
to read the experience of others with Lupus. We have
to remember that everyone experiences Lupus different.
It is not different by sex (male or female) but by
individual. That is one of the reasons it is so hard
to diagnose the symptoms can vary significantly
for one person to the next. Good Luck to you.

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