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Old 01-11-2003, 06:11 PM   #1
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Join Date: Jan 2001
Location: Virginia, USA
Posts: 14
Jann HB User
Question Is there early warning signs?

Hi everyone. I was hoping someone could tell me if you experienced any early warning signs before actually being diagnoised with Lupus? My doctor told me that she "won't be surprised" if I end up being diagnoised with it. I don't know exactly how to take that. She mentioned something about there not being a sure-fire test for it, and that it's something that is diagnoised by process of elimination. She also said I'm on my way to being diagnoised with Fibromyalgia, which again is by process of elimination she said. I don't know much about Lupus but doesn't it and Fibromyalgia have some of the same symptoms? I would really appreciate any insight you could give me. Thanks for reading and for all replies.

 
Old 01-12-2003, 12:51 PM   #2
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Join Date: May 2002
Location: Ohio
Posts: 222
Denise F HB User
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Yes, the pain and fatique can be the same as lupus.
But, just those symptoms doesn't mean you'll develope
Lupus. Ask you're Dr why he thinks that?
Lupus can have many other symptoms any part of the
body can be affected. Skin rashes, red face,sensitivity
to the sun, fevers, numbness, dry eyes and mouth,
pain, fatique and those are just the mild ones. More
serious can be internal organ involvement.

I can look back and see symptoms of lupus years before
I was diagnosed. Red butterfly facial rash that would
come and go. Sometimes my joints would ache for no
reason. Numbness in my hands. Unexplained fatique.
Also, a feeling of fatigue after being in the sun.
Often people with Lupus don't tan very well. I was
also always slow to heal, got yeast infections often.
Just try to take good care of yourself and try not
to worry. Even if you develope Lupus there is every
chance that it will stay mild.



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Old 01-12-2003, 04:39 PM   #3
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Join Date: Dec 2002
Location: CALIFORNIA
Posts: 42
MAN WITH LUPUS HB User
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HI

YES THERE ARE A LOT OF SIGNS FOR EXAMPLE FATIGUE, LOSE OF APPITITE, BOTTOM JAW WILL HURT OR BE SORE THATS FROM NOT EATING FREQUENTLY. BUTTERFLY RASH ACCROSS YOUR NOSE AND CHEAKS, SORES ON YOUR TOUNG, RASH ON YOUR SKIN THEY LOOK LIKE YOU BROKE OUT ON YOUR ARMS AND CHEST, YOU CAN DEVELOPE REYNODS ON YOURFINGERS AND TOE NAILS, AND THERE IS MORE JUST DON'T BE SCARED JUST GET TO YOUR DR. ALSO LUPUS IS MAINLY CAUSED BY STRESS BE CAREFUL. BUT ITS DIFFERENT FOR MEN AND WOMEN IM JUST TELLING YOU FROM A MANS POINT OF VIEW THIS IS WHHAT I FIRST WENT THROUGH IN THE BEGINING. TELL YOUR DR. TO DO A CBC ON YOU THIS BLOOD TEST DX'S LUPUS AND MONITORS IT.


SAL


Quote:
Originally posted by Jann:
Hi everyone. I was hoping someone could tell me if you experienced any early warning signs before actually being diagnoised with Lupus? My doctor told me that she "won't be surprised" if I end up being diagnoised with it. I don't know exactly how to take that. She mentioned something about there not being a sure-fire test for it, and that it's something that is diagnoised by process of elimination. She also said I'm on my way to being diagnoised with Fibromyalgia, which again is by process of elimination she said. I don't know much about Lupus but doesn't it and Fibromyalgia have some of the same symptoms? I would really appreciate any insight you could give me. Thanks for reading and for all replies.
__________________
PEREZ

 
Old 01-14-2003, 12:30 PM   #4
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Join Date: Jan 2003
Location: Germantown, Maryland
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Lisa1960 HB User
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Hi,

I'm new here. I also have been told by my rhuemy doc that she suspects lupus and is watching for other symptoms.

While being diagnosed with Graves disease (hyperthyroid) I had my first elevated ANA result. Further testing was done, but all came back normal. In the last six months or so I have been to the doctors with complaints of sores in my mouth, pluerisy twice, hive-like rash on my neck, upper back and face that didn't itch, urinary tract infection (haven't had one of those in 15 years), all over body aches, total exhaustion, and pulmonary fibrosis.

I am also a smoker with emphysema and a single pulmonary nodule and have CT scans every 3 to 6 months. On my last CT scan it was also noted that there were numerous granulomas at the bottom of both lungs.

Here's my question....With me being diagnosed already with thyroid disease, obvious pulmonary issues, and also spinal arthritis, how does a doctor know which symptoms to attribute to lupus and not to any of the other issues I have going on?????

Thanks in advance for any and all info and input you can give me.

Lisa

[This message has been edited by Lisa1960 (edited 01-14-2003).]

 
Old 01-14-2003, 10:06 PM   #5
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Join Date: Jan 2003
Location: modesto ca usa
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sandy b HB User
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Hi Jann, I think it's very hard to make a diagnosis until something "concrete" happens. Most of the doctors I have seen since 1977 have changed their minds a few times about what I have or don't have. I quit going to the doctor for a few years when I got tired of hearing I had something new. The disease mimics so many other things. When I noticed my daughter, at age 12, getting sores in her ears and on her head, I had her tested. She was positive. She's 19 now and is starting to have a few problems. Since she is over 18 I can't make her decisions, but I did phone her doctor and get tests ordered. She's 5 foot 7 inches and has lost weight, down to 94 pounds. She was a sophmore at Berkeley, but just recently had to give it up because of the fatigue and stress. I think it's kind of up to us to watch out for ourselves. I did alot of research over the years. My father died from Graves. He was in perfect health until he had his arm crushed at work and had to have a metal rod put in. It never really healed and he started having hurt, lung, kidney problems. It's kind of like a puzzle and we don't know everything until all the pieces are in. My daughter wanted to know why we couldn't just go to one doctor who specialized just in autoimmune diseases. It seems we have to see a specialist for each part it's affecting at that time and my doctors don't always work together. I think alot of people go undiagnosed. I heard more people die from undiagnosed autoimmune diseases than breast cancer and one woman dies every 9 minutes from that. I can't remember where I heard it or if it's true, but it makes you think. I also have choctaw indian in me and the tribe I'm from has had a gene found for scleroderma. I have had alot of diagnosis but came down to lupus with overlapping scleroderma and dermamyostosis. I have Raynauds, Sjorgens, mouth ulcers, stomach ulcers, etc. etc. I really think part of it is heredity and think it's made worse by environmental problems. Sorry, I think my pain meds have kicked in and I have overstayed my reply.LOL
I don't think we see warning signs until it's too late, and need to do our own research and keep our fingers crossed. Good luck to you. Hope you feel better soon. Sandy B

 
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