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Old 01-18-2003, 04:42 AM   #1
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Join Date: Jan 2003
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Paris007 HB User
Question Mixed Connective Tissue Disorder & Pregnancy

Hello, I'm new here, and hope I can get some input. I hope it was okay that I posted my question on this board, since my disorder is related to Lupus.
I was diagnosed with MCTD about 8 months ago. My rheumatologist was going to put me on medication for it, but I told him I wanted to try to have a baby. He told me that after the baby, he would put me on medication. Well, I got pregnant, but unfortunately had a miscarriage. We waited a few more months, and now I'm pregnant again (about 4 weeks now). I went to see my rheumatologist yesterday, and said that the miscarriage might have been caused from my disorder. My OB doctor didn't say anything about the cause for the miscarriage, just that it's just one of those things. I actually didn't know that miscarriages were a side effect of MCTD, until yesterday. I was very distraught at my doctor's office, and thought it was just meant to be. I saw my doctor late in the day yesterday, and said he will try to get a hold of my OB doctor. I think the OB's office already closed, so he will talk to her on Monday. I'd like to ask for any advice you can give me, words of encouragement, anything. I appreciate it, and hope you have a nice day.

 
Old 01-20-2003, 01:30 PM   #2
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Join Date: May 2002
Location: Ohio
Posts: 222
Denise F HB User
Post

I have Lupus and had one miscarriage because my
progesterone count started going down instead of up
when I got pregnant. The second time I got pregnant
the same thing started to happen but we caught it soon
enough that taking progesterone pills helped keep
my pregnancy going. It is only important during
the first weeks of pregnancy so I didn't have to
take the pills very long. I don't know if this was
your problem but it would be a good idea to have
a blood test done to check the level as soon as you
think you are pregnant. Good luck to you. My daughter
is 17 now by the way, and a delight.

------------------

 
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Old 01-20-2003, 01:49 PM   #3
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Join Date: Jan 2003
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Paris007 HB User
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Thanks so much for your reply, and words of encouragement, Denise F. I actually went to the lab today, where they took 9 of those small vials of blood from me (yikes!). I have another appointment with my rheumatologist in 2 weeks, when I'll be about 6 weeks pregnant by then. I miscarried at 9 weeks last year, I think I forgot to mention that. It's nice to hear that you have a child, and I'm just praying that my pregnancy will be okay. Thanks again, and I'll keep my progress posted.

[This message has been edited by Paris007 (edited 01-20-2003).]

 
Old 02-05-2003, 08:54 PM   #4
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Join Date: Feb 2003
Location: chipley, florida, USA
Posts: 3
ptommygirl68 HB User
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I just wanted to tell you to hang in there! I too have Lupus and have two beautiful children!!!! I strugled with being tired and worn out, but the key is to "KEEP GOING" dont give up!! I work and went to school also this past year! I have my ups and downs, but even on the days I feel like I cant get out of bed, I get out and make myself get up and GO!!! I know how you are feeling, scared and worried!! I had to go to specialists during my pregnancies, but it was worth all the sacrifices I made to look into my kids eyes!! I know you will do fine!! It is hard and long, but you will!! I just want you to smile and keep your head up!! good luck ptommygirl!!!!

 
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