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Old 02-01-2003, 04:39 PM   #1
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Join Date: Jan 2003
Location: Port Pirie, South Australia, Australia
Posts: 17
annika.64 HB User
Wink EXTENSIVE PERSONAL EXPERIENCE WITH LUPUS

I am 38 & have had Active SYSTEMIC LUPUS for more than 15 years. My disease involves ITP, TEMPORAL LOBE EPILEPSY (Complex Partial Seizures), CONNECTIVE TISSUE INVOLVEMENT & also DISEASE & DRUG INDUCED OSTEOPOROSIS.I'd love to compare notes with anyone in similar circumstances. Go to the OSTEOPOROSIS Forum to find more details about that part of my condition.



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annie kay
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Old 02-02-2003, 09:54 AM   #2
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Join Date: May 2002
Location: Ohio
Posts: 222
Denise F HB User
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My Mom had to be on prednisone for a short period of
time and a year later suffered a fracture to her
back from just bending over. She is on meds now to
build up her bones. She has always gotten plenty
of calcium so we were surprised at this. The Dr.said just that short time on steroids could have caused this.
I can't imagine what they could do when they have to
be taken often. Seems to me the Dr.s need to treat for
bone loss at the same time they are giving the steroids
to try to counter act this problem.???????


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Old 02-06-2003, 12:16 AM   #3
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Location: Port Pirie, South Australia, Australia
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annika.64 HB User
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Hi Denise,
It sounds like your Mum must have been on quite a high dose of Pred. What was her condition to need these? When I began in 1988, we continually asked by rheumy "What about osteo?" and always got the answer "We'll worry about that in 20 years!" Well, it's near enough to the 20 years, and we discovered by accident (over 2 yrs ago) because I fractured a rib whilst straining on the toilet (don't laugh - everyone does it!)My bone mass was near enough to fine - it's been monitored yearly for the past 6-7 years. Anyone, I can't stress more strongly that drs & patients need to be aware of the probs. If your particular dr isn't interested, get into gear & change to someone you can trust.
Has your Mum fractured a vertebral process? How is she? Is she on Fosamax?
All the best.

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annie kay

[This message has been edited by annika.64 (edited 02-06-2003).]
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