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Old 01-18-2003, 07:25 PM   #1
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MAN WITH LUPUS HB User
Angry Having Lupus & Raynods fighting the weather

I think having Lupus is tuff but I was also Dx with Raynods 1 1/2 yr later i guess that explained my blue fingers. Plus I used to live in S.F fo 5 yrs its cold all right up there.

sal
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Old 01-18-2003, 11:28 PM   #2
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I know as a female having both is awful and we live in the tundra of Upstate NY I just can't stand this lately...The winter months are horrible...

 
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Old 01-19-2003, 10:49 AM   #3
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shasha HB User
Angry

I also have raynauds although I dont have my lupus diagnoses yet. I did get diagnosed with raynauds a few months ago. Living in VA has made it very tough. I dread getting stuff out of the freezer or even the fridg. I have been wearing gloves inside and keep thurmal socks on because I also have it on my toes.

 
Old 02-10-2003, 06:35 AM   #4
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Hi. I'm new to the site. I was dxed with secondary Raynauds last month, but I think I probably had the milder version of it most of my life. I have terrible foot ulcers, under the skin, and now I'm getting callouses there. The doctors keep insisting that its from my shoes, but I know its not - the skin is thickening only in those spots. I live in NY and the freezing weather this year is torture on my feet. They burn a lot. I don't have any other dxes yet, they are working on ruling out a lot of things. Do you take meds for your Raynauds?? I take Prednisone and Procardia, and that seems to reduce the swelling in my feet, which helps with the ulcers. Just think -- in a few months it will be spring!!!

 
Old 02-10-2003, 05:26 PM   #5
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Hi

Prednisone is for treating Lupus ask your Dr. I wrote to you about it already take care.

Sal

Quote:
Originally posted by coldfeet:
Hi. I'm new to the site. I was dxed with secondary Raynauds last month, but I think I probably had the milder version of it most of my life. I have terrible foot ulcers, under the skin, and now I'm getting callouses there. The doctors keep insisting that its from my shoes, but I know its not - the skin is thickening only in those spots. I live in NY and the freezing weather this year is torture on my feet. They burn a lot. I don't have any other dxes yet, they are working on ruling out a lot of things. Do you take meds for your Raynauds?? I take Prednisone and Procardia, and that seems to reduce the swelling in my feet, which helps with the ulcers. Just think -- in a few months it will be spring!!!
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Old 02-10-2003, 05:30 PM   #6
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Cool

I'm sorry move then I live in Socal I used to live in S.F its cold there and I had to move to better my self BUNDLE UP STAY WARM!!!!!!!!!!!!!!!!!

Sal
Quote:
Originally posted by ManicOne:
I know as a female having both is awful and we live in the tundra of Upstate NY I just can't stand this lately...The winter months are horrible...
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Old 02-10-2003, 05:32 PM   #7
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MAN WITH LUPUS HB User
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Hi

Talk to your Dr. about (Nephedaphine)this is the MED that treats Raynods and keeps it under controll. I take 150mg 2xdaily.

Sal

Quote:
Originally posted by shasha:
I also have raynauds although I dont have my lupus diagnoses yet. I did get diagnosed with raynauds a few months ago. Living in VA has made it very tough. I dread getting stuff out of the freezer or even the fridg. I have been wearing gloves inside and keep thurmal socks on because I also have it on my toes.
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PEREZ

 
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