Hello! I'm not really sure this is where I should post or not!?? I have alot of questions, and I feel as though I'm searching in the dark, so please bare with me!
Gosh I don't know where to start. My doctors won't test me for lupus. Is there a way that the normal cbc tells anything about lupus? I'm always told that is is average. So many of my symptoms go right in one ear of my doctors and right out the other one. I have seizures. These came out of the blue. No reason, no nothing from anyone except it happens. I also have extreme fatique(sp) along with joint pain and swelling. With lupus, does the joint pain move around? It started very severe in my elbow (right), then the next day it was also in my left. This went on for two weeks. I couldn't even straighten my arm. My GP did blood work (cbc) found nothing and said it was probably a viral infection that would go away. Well my elbows are better, but my knees are bad. I also have soreness in my hip muscles. I get low-grade fevers all the time now that he can't explain. My neck gets very stiff and I have on and off again sore throats. I have also noticed that my hair is coming out at an alarming speed. I got my hair cut above my shoulders to see if it was from the everyday stressors. For the last week and ahalf I have been able to fill a sandwhich bag up everytime I brush my hair. I have always lost alot of hair, but this is way more than I ever have before. I have a dermatologist appointment in the middle of March, but that seems so far away! Is this a sign?
For a year now, i have toes that go numb. It first started with one, and now has advanced to three. I'm not sure if its Raynoud's or not. It comes and goes, but not always when my feet are cold. Any ideas?
I also sweat more than what I used to. My job is very physical, but I never soaked my shirts until a few months ago. It isn't exactly a pretty sight for a 29 year old female!!!! That might be associated with my seizure med (dilantin 400mg) I'm not sure. Something else that my friends at work have noticed, is how ofter I get flushed. Usually I'm told how red my face is. Sometimes it feels as though it is on fire and other times I'm not even aware of it. I am under flouresent lights at work. I have never noticed any rashes, so does that rule lupus out? Or can you have it and never have a rash?
I'm sure I'm leaving out stuff, but I guess that is the basics. If someone could just give me an idea if maybe I'm looking in the right place. I have a neuro appointment on the 26th and would like to go in there armed with lots of info. Will he be able to test me??
Thanks so much for taking time out and reading this post. As I said, I really feel out in the dark and could use some good advice!! Thanks in advance
Hope all is going well for you today!

Lisa
[This message has been edited by Lisa T (edited 02-20-2003).]
[This message has been edited by Lisa T (edited 02-20-2003).]