It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 03-17-2003, 03:53 PM   #1
Newbie
 
Join Date: Mar 2003
Location: toronto, ontario, canada
Posts: 1
Danielle in Port Hope HB User
Question Doctors arent listening - should they? Your help?

I am 40 yrs, female, 155 lbs with diagnosed Ankylousing Spondilitis of 25 years. Mother of a 11 yr son, great husband!
Stress is not a issue...(Docs like to use that one)

In the last 2 years I have and am still experiencing a very disturbing burn in my head above my right ear, (it clouds my thoughts, short term memory is non exsistant). This pain is the unbelievable and ALWAYS there! I also am VERY tired, my nerves electricute me @ 25 times a day all over my body (as if I am hooked up to a car battery). I am loosing a fair amount of hair ...it falls out. (embarrassing). I frequently have mouth ulcers, experience night heat flashes, legs and spine are on fire ....dont sleep well... My heart has 3 slight valve murmurs...high BP on meds...the other problem I am faced with every day now is a burning right cheek...it gets very HOT...red and itchy....this make me feel sick to my stomach, HELP!

I have a seen 4 neuro's -all idiots! However my GP & rheum doc are helpful....my ana? was "slightly elevated" as was a "inflammation" component in my blood....I yet to have relief of the head pain - when I "flare" I feel as if I should be calling for the ambulance. 2 demorals dont help, I am on Celebrex (works well) and high blood med.

Does anyone have a suggestion for me? Should my Docs be more concerned? My life is crap....needless to say I am very depressed as it has been 2 years of no help....no diagnosis...

I had a head MRI done 17 months - negative, is it time for another, or is that a waste? Is there another test for my head?

Giving up hope, Danielle

 
Sponsors Lightbulb
   
Old 03-18-2003, 08:21 AM   #2
Senior Member
(female)
 
Join Date: Apr 2002
Location: California
Posts: 264
RedeemedHeart HB User
Cool

Danielle,
Have you ever had your estrodiol levels checked? I had that same weird heat in the head thing and it turned out to be estrogen deficiency.
I take a low dose of estrodiol and use a progesterone cream and it has taken care of it for the most part.
I also was loosing hair, having night sweats; memory troubles (I also have FM so some of that is normal for me) but the estrogen sure helped with the concentration problems.
The back pain is probably your AS. AS can also cause night sweats so the only way to tell if you need hormones is to get it checked. Don't let them check just your FSH levels make them do an estrodiol check specifically.
Hope this helps.
Blessings,
Kathy

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Can doctors refuse to treat pregnant women? loveverafter Pregnancy 2 03-22-2010 06:50 AM
Doctors opinion = no such thing as vit B12 deficiency Kertie446 Nutritional Disorders 9 05-13-2009 02:56 PM
Problems with new Doctors with old doctors pain management program LDS 1830 Pain Management 4 01-02-2009 12:45 PM
i have ptsd and a fear of doctors and medical care sunbury Post-Traumatic Stress Disorder (PTSD) 14 12-07-2008 01:25 AM
Confused do doctors numb area before cortisone injections sammyo1 Pain Management 13 10-06-2007 04:29 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (172), ladybud (43), AngelicBrat (16), luca689 (7), ksp (6), neveragain444 (6), luvinmusiq (5), Daisygrace (4), brooklyngirl (4), paperbgprinces (3)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 11:21 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!