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Old 05-04-2009, 02:48 PM   #1
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Question campath

any one with lupus treated with campath?

 
Old 05-11-2009, 02:35 AM   #2
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Re: campath

hi dixy ... googled it and looks like a treatment for MS ... are you using this as a treatment & how is it going for you ... Angelique

 
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Old 05-12-2009, 09:31 AM   #3
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Question Re: campath

Hi Angelique

I have lupus and other autoimmune disorders. I had campath by infusion over a couple of weeks in june 2007.

Not a course of 3 weeky injections over 12 weeks which they treat MS or Leukemia.

Think it must be rare to be treated with Campath as I find its hard to find anyone who has.

All I know is it can stay in your body for up to ten years. Since having this Im having side effects which cant be explained.

So have you been treated with this or know anyone who has

dixy

 
Old 05-12-2009, 01:51 PM   #4
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Re: campath

hi dixy ... sorry, i havent but i could suggest try posting on various message boards ... i googled 'lupus message boards' and have found a number.
bad reactions & side effects - that is what did my head in when on all the px's ... good luck & hope you get insight soon ... A

 
Old 05-14-2009, 06:15 AM   #5
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Re: campath

Hi Angelique

will do thanks

dixy

 
Old 05-16-2009, 10:02 AM   #6
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Re: campath

hi dixy - any insight yet? A

 
Old 05-19-2009, 08:16 AM   #7
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Lightbulb Re: campath

hi

Talk with consultant she thinks it is the cells which r dying that r near the brain the waste is causing visual disturbances. As campath is in the body 4 ten yrs.

So sort of explanation

dixy

 
Old 05-23-2009, 08:59 AM   #8
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Re: campath

hi dixy have you found other ppl with similar treatment?
A

 
Old 05-25-2009, 02:12 AM   #9
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Re: campath

hi

nope not any one

dixy

 
Old 05-25-2009, 01:36 PM   #10
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Re: campath

isn't it funny how uniquely unique we are ...

 
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