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Old 06-05-2003, 11:25 AM   #1
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samiam42 HB User
Question Tumid Lupus or Lupus LET

Hello:

I have just been diagnosed with Tumid Lupus. Does anyone else have this? I cannot seem to find much information about this form of Lupuson the web. I have questions....does anyone else have this? How did you get diagnosed? Did you have any other symptoms? Can this grow into SLE? ....so many more

 
Old 06-05-2003, 07:24 PM   #2
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Denise F HB User
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Never heard of that kind of Lupus. Only heard of
discoid Lupus or SLE. Discoid affects only the skin
and SLE can affect the skin,connective tissues and
internal organs. They may rate SLE sometimes by saying
mild I have heard that but I haven't heard the word
you were given.

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Old 06-06-2003, 04:02 AM   #3
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samiam42 HB User
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Denise:

Thanks for the response. I am seeing a rhumy who specializes in Lupus on Monday and hope to get some better clarification. My understanding from what I can find on the web is that Tupid Lupus is rare (only 40 cases dx) and only become SLE in 1 out of every 14 cases. The rash is similar to those described for Subcutaneous Lupus...I will try to withhold panic until I have seen the specialist.

Thanks for your answer, I will post more as I find it out, hopefully this will help someone else too.

Stephanie

 
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