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Old 06-15-2003, 09:52 PM   #1
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techo HB User
Question lupus diagnosis

those who have been diagnosed:
how long before you noticed symptoms were you diagnosed?

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Old 06-16-2003, 05:38 AM   #2
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zip2play HB User
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techo,

Though I got my "Negative" after MUCH testing, I can say with assurance that nearly everyone with Lupus has the symptoms BEFORE the diagnosis....often YEARS before!

 
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Old 06-17-2003, 09:05 AM   #3
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BarbaraH HB UserBarbaraH HB UserBarbaraH HB UserBarbaraH HB User
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Hi,

Zip2play is right. Almost 100% of lupus patients have had symptoms for years that were written off as over-work, flu, stress, and other temporary illnesses. It is only looking back that an astute doctor can see a pattern that adds up to, with corroborating lab work, lupus or a similar autoimmune disease.

I was deeply tired for 2 years before I suddenly had an unexplained rash, then joint swelling and pain that sent me to doctors.

I wish you well - Barbara
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Old 06-29-2003, 08:06 PM   #4
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vickcat2002 HB User
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I showed symptoms for 6 years at least before a correct diagnosis was made. Depression, RA, and the lovely "all in your head" diagnoses were made! It was rough and not one doctor took into consideration that my mother has RA and father has discoid lupus!! 2 genetic links there! LOL, I have had it with doctors, the only one I trust at all is my Rheumatologist. But good luck! And know this, there is NO ONE TEST for Lupus! My ANA goes from being high to nothing within a month!!! Lovely disease this Lupus!
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Old 06-29-2003, 09:33 PM   #5
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Denise F HB User
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My first symptoms were when I was Pregnant. I had a very red
face and my babies Dr. asked me if I had Lupus. I had never heard
of it and had no other symptoms and of course with a new baby
I soon had other things on my mind. It was about 10 years later that I had a lupus flair where Everything went haywire and I was
diagnosed that same week. I had a couple of years where I felt
terrible but now it's laying low again. KNOCK ON WOOD!

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