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Old 12-02-2002, 08:39 AM   #1
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Starbuk498 HB User
Post Pregnant with positive Lupus anti-coagulant - aka "sticky" blood

Hello all,

I have lupus now over 10 years.....
I am 7 1/2 weeks pregnant and found out wednesday that I have the Lupus anticoagulant - also known as "sticky blood". I have not tested positive for this until I got pregnant.......which is probably caused because of the hormones that are raging now.......
My Rhuemy said that a baby asprin will be ok for now.....and once he discusses it with my OB, they will discuss the other option which is heparin shots to thin the blood out to make sure that proper blood supply gets to the placenta for the baby.

My question is.... has anyone had this problem?.........and can you tell me your story....?? I don't know of anyone who has had this and I am wondering how people do with this problem during pregnancy......and since all that I read up on it scares me to death......I just want to hear real-life stories.

thanks.....all that anyone can contribute is GREATLY appreciated......thanks much,

a very concerned mommy to be,
Stefanie
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Old 12-05-2002, 12:04 PM   #2
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I suffered from an inability to become pregnant and spent years undergoing infertility treatments in order to have children. During my infertility testing I was found to have very high antiphospholipid antibodies (anticardiolipid IGg type--the ones most likely to cause problems). I also had a positive ANA. Lupus had been mentioned to me by my primary care doc, and I had some other tests, but the rest were negative. I did not have "classic" lupus symptoms like fever, joint pain etc. so for the time being the idea of lupus was dismissed, and I went about trying to get pregnant.

THese lab findings were actually found between child one and child two. During my second pregnancy I was treated with baby aspirin during my first trimester, and nothing else. I began to experience daily, around the clock contractions at about 5 1/2 months. I was not dialating so I declined meds to stop the contractions. I continued to experience the contractions, but had a full-term pregnancy.

When I initially found out about the antiphospholipid antibodies, I was told that doctors were cautious about prescribing the heparin because it can cause harm to the mother. A woman had been reported to have had a brain bleed while receiving heparin, and since I had not had any miscarriages it was not recommended.

I wanted to add that todate I have not been diagnosed with "clinical lupus", but I definately have an autoimmune problem. I had autoimmune thyroiditis following childbirth, and I suffer from multiple neuropathies (spelling?), and I recently tested positive for antineuronal antibodies. These antibodies are positive in CNS lupus, and I am being referred to specialists because of this. My mother and my sister have SLE. I suspect that I do too.

My advise is take the baby aspirin, and follow your doctors orders, I would at least want a consultation with a doctor who specializes in high-risk pregnancies, if not be followed by one. My sincere best wishes to you, Susan

 
Old 12-06-2002, 07:19 AM   #3
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Susan,

Thank you for your kind reply. I will take your advice.

thanks again!
Stefanie
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Old 02-19-2003, 07:52 PM   #4
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I was recently diagnosed with lupus anticoagulant after having a blood clot in my leg and three blocked arteries.I am well past the age of having kids, so can't help you there.My treatment was 3 months of fragmin injections then on coumadine.I have to go for regular blood tests to monitor the amount of coumadine.If I were you I would keep on top of treatment as soon as you are not pregnant any more so you avoid blood clots! Good luck with the baby!

 
Old 04-05-2003, 03:31 PM   #5
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rayofsunshine HB User
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i am a mother of two,28, and i suffer from sticky blood, unfortunately i didnt find out until two weeks after giving birth my last baby, when i suffered a small clot on the brain. my problem was i didnt get dx until this point as well, although i knew i had lupus since the age of 13 .but because i didnt have a diagnosis sooner,i didnt get the right treatment during my pregnancies. luckily u have the knowledge of this, you will get the right treatment,and you and your baby will be fine. all the best for the future.

 
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