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Old 09-27-2003, 03:32 PM   #1
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amyleigh28 HB User
Question Positive ANA with nucleolar pattern anyone???

anyone out there with a positive ANA with a nucleolar pattern?? I would really like to hear what your sypmtoms are and what if any diagnoses you have with this type pattern. I have read on the net that nucleolar patterns are indicative of scleroderma but I don't feel that I have any of the symptoms of this. Any replies will be greatly appreciated.

Thanks,
Amy
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Old 09-28-2003, 03:27 PM   #2
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Hi Amy,
I have a positive ANA wih the nucleolar pattern. I'm not sure what that means though. I have SLE (systemic lupus)and have been going through tons of testing the last two weeks. Symptoms for me include painful joints and muscles. I ALWAYS hurt, but refusing all meds at this point. Not sure I can hold out any longer. I also have the antiphospolipid antibody syndrome. Recuperating from open heart surgery due to blood clots in heart. I'm only 43 but feel like 73. What are your symptoms?

 
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Old 09-28-2003, 03:34 PM   #3
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Amy,
Forgot to add that my MRI is showing active white matter lesions in my brain. Just finished testing for MS, awaiting results this week.

 
Old 09-29-2003, 12:55 PM   #4
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I am going through the same thing. I have no syptoms of schleroderma, but I have the nucleolar pattern. My main symptoms are fatigue, muscle/joint pain and memory loss.

 
Old 09-29-2003, 03:23 PM   #5
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Jessica: have you been diagnosed with anything? I have extreme fatigue, joint and muscle pain and memory problems also.


Sampy: Have you had that diagnoses long? What was you ANA titer?

I am just trying to find out all I can before I go to the rheumatologist so I will know better what to ask about. I'm getting very nervous about the whole thing. I bet I woke up 50 times last night. Boy, do I need some sleep!!
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Old 09-29-2003, 04:00 PM   #6
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Amyleigh,
I was diagnosed with systemic lupus in January of this year. However, because I needed emergency open-heart surgery, any treatment for lupus was put on the back burner. I am now forced to deal with it. As for the nucleolar pattern, if I'm not mistaken, (and don't quote me), I think it may be part of the antiphosholipid antibody syndrome. This means that the platelets stick together. IF that's the case, all that would be needed for treatment would be a baby aspirin once a day. Don't lose sleep over it. Write down all your questions so you can ask the doctor. Hope this helps.

 
Old 09-30-2003, 06:41 AM   #7
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Amy, I haven't been officially diagnosed yet. I've been told about 4 diff. things by 4 diff. Dr's. It's been fibromyalgia, lupus, MCTD, and just plain arthritis. It's very frustrating, but it can take a while to get a definate diagnosis unfortunately. I just wish I had a definate answer -I hate the uncertainty. I am waiting for the results of my most recent tests to see how things are going. The memory loss has been more of a problem in the last week or so and I've also been having a flare for the same amount of time. I'm more confused and having a hard time concentrating on anything (which makes it hard to do my job). I feel like I have ADHD! =) Have you even been to a Dr. yet? or is this your first visit? I know how nerve-racking it can be when there is so much uncertainty, so hang in there. I will let you know what the Dr. says about the memory loss, please keep me informed if you learn anything new as well. Keep Smiling! =)


 
Old 10-01-2003, 05:27 PM   #8
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Amyleigh, Please see my post about the antiphospholipid sydrome. If your platelets ARE sticking together, I posted information that might be of interest to you.

 
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