It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-06-2003, 05:05 PM   #1
Senior Member
 
Join Date: Feb 2003
Location: Beaverton, Or, USA
Posts: 103
JDtweety HB User
Post Can you have a negative ANA test and still have Lupus?

Hello..

I was wondering if it is possible to have any form of Lupus with out having a positive ANA test? I recently found out I have FM, but I experience so many of the same symptoms of Lupus, mostly the fatigue and redness across the checks and nose (Its not quite "rashy" looking but it looks as though it could turn into bumps), and I hurt all over. Anyway, from what my DR said, I have no signs of lupus because of my ANA test and my SED rate was fine. Infact, all my tests came out ok. He did say that I had an "elevated calcium and protein level", but he never really explained what that meant. Any ideas? Thank you for your time.

JD

 
Old 02-06-2003, 07:43 PM   #2
Member
 
Join Date: Oct 2002
Location: va,usa
Posts: 57
shasha HB User
Post

hi j.d.

i have just recently been diagnosed so i am not exactly an encyclopedia book of knowledge, but i have read 98% of people with lupus have a positive ana. i also know it can take time for it to show up in the blood. good luck

sha

[This message has been edited by moderator1 (edited 10-15-2003).]

 
Sponsors Lightbulb
   
Old 02-07-2003, 11:34 AM   #3
Inactive
 
Join Date: May 2002
Location: Ohio
Posts: 222
Denise F HB User
Post

The ANA is just an indicator, but a good one. It can
go up and down all the time so sometimes it just doesn't
show positive. I know from reading over the years that
you can have Lupus and it not show up all the time in a blood test.

------------------

 
Old 02-08-2003, 11:29 PM   #4
Senior Member
 
Join Date: Feb 2003
Location: Beaverton, Or, USA
Posts: 103
JDtweety HB User
Post

Shasha and Denise,

Thank you both for your reply. I am so frustrated with the whole process of trying to find out what exactly is wrong with me. I am tired of feeling so horrible and I miss the old me. I guess I really need to stop worrying about "what" I have and concentrate on how to manage it. Thanks again for your reply.

JD

 
Old 02-10-2003, 05:40 PM   #5
Junior Member
 
Join Date: Dec 2002
Location: CALIFORNIA
Posts: 42
MAN WITH LUPUS HB User
Cool

Hi

Tell your Dr. to give you a CBC blood test and Check your Urin count 24 hr test this will tell you if you have Lupus remember Lupus is very hard to pick up and detect it can take on many faces like Cancer, Lukemia, Alstimers but its just Jpus in the end.

If your Dr. is just not being serious about this then get a NEW DR. then a REUMOTOLOGIST.

hOPE THIS HELPS GOOD LUCK

Sal

Quote:
Originally posted by JDtweety:
Hello..

I was wondering if it is possible to have any form of Lupus with out having a positive ANA test? I recently found out I have FM, but I experience so many of the same symptoms of Lupus, mostly the fatigue and redness across the checks and nose (Its not quite "rashy" looking but it looks as though it could turn into bumps), and I hurt all over. Anyway, from what my DR said, I have no signs of lupus because of my ANA test and my SED rate was fine. Infact, all my tests came out ok. He did say that I had an "elevated calcium and protein level", but he never really explained what that meant. Any ideas? Thank you for your time.

JD
__________________
PEREZ

 
Old 03-14-2003, 11:16 PM   #6
Newbie
 
Join Date: Mar 2003
Location: Olympia, WA USA
Posts: 1
boz428 HB User
Post

I have been diagnosed (by history) as having lupus since the age of 12 years....and by active symptoms since I was 31 years old. When I was first dx'd by active symptoms, the MDs used a 10-point check list. I was positive on 9 of the items. Since then, the technology has improved. I continue to have the symptoms but much fewer exacerbations. I have had my pericardium removed due to inflammation caused, according to the MDs, by the lupus, suffer from arteriothrombosis in my legs, and have had other issues related to lupus. HOWEVER, when I have been tested via blood panels on five occasions, three of 5 times, all results came back as negative. My brother has been positively dx'd with lupus as was my father, grandmother, niece and sister (we are native american). All of my living relatives who have lupus have also experienced these alternating results. One of my MDs--my rheumatologist--stated recently that there seems to be growing evidence of a transient form of lupus. Hence the intermittently positive/negative results of the testing. Denise--since you seem to be well informed on lupus--have you heard/read anything about this? Can being over 40 years old now (I have read that the disease goes into remission after the age of 40 for many sufferers) contribute to the recent intermittency of my test results?

 
Old 03-15-2003, 04:52 AM   #7
Inactive
 
Join Date: Jul 2002
Posts: 97
curse HB User
Question

Hey Man w/ Lupus-
If you did get a CBC & had lupus what would a CBC show?

Thanks!

 
Old 03-24-2003, 04:26 PM   #8
Senior Member
 
Join Date: Feb 2003
Location: Beaverton, Or, USA
Posts: 103
JDtweety HB User
Post

Hi, Sorry it took me so long to reply. Man with Lupus, I did have every blood test ran and the only thing that came up a little unusal was that I had a high protein and calcium level in my blood. Nothing really indicated Lupus, other than I have the fatigue, rash on my face and my body aches all the time. I did go to the Rheumy and she said it was more than likely Fibromyalgia and possibly Raynauds because my hands hurt so bad. Thanks for everyones input..

JD

 
Old 03-29-2003, 09:40 PM   #9
Newbie
 
Join Date: Mar 2003
Location: Lompoc, Ca. USA
Posts: 6
krotondi HB User
Post

JD,

I was diagnosed in 1994 and always had a high ANA...until now. While my WBC was still low, thyroid antibodies high, low platelets, mono high, blood in the urine, very low C4,etc...were still there, my ANA came up negative! I was shocked. I'm nearing 40 (37), but know the lupus is still present.

So this is new to me as well. I don't have a professional answer, but am interested in what my rheumy will have to say about it. I'll write back after seeing her.

Karen

 
Old 04-08-2003, 06:02 AM   #10
Newbie
 
Join Date: Apr 2003
Posts: 3
slik HB User
Red face

Yes you can, my gram, & I both have been diagnosed without it. My gram had extensive damage to her kidney's & liver, & an ana never showed for 8 years. She was anemic, & had gout.
I have CNS Lupus, Vasculitis, which is causeing all sorts of stuff, I do have 5 brain lesions & siezures, paralysis, with attaches, weakness, loss os speech, nerve damage in my arms ,hands, legs & feet. With NO ANA. Some doctors have learned it is impossible, others know different, & treat symptoms, till it does show. It is very rare, but does happen. With my CNS LUPUS it states there is normally no ANA, with it. Who knows enough about this auto immunething? If you find the doctor that does, there will be a cure ! lol...
SLIK

 
Old 04-08-2003, 11:09 AM   #11
Inactive
 
Join Date: May 2002
Location: Ohio
Posts: 222
Denise F HB User
Post

Never read anything about a NEW FORM of transient Lupus.
As far as I know Lupus has always been kind of transient.
By this I mean that Lupus has long been known to come
and go. That is one of the reasons it is so hard to
diagnose.Lupus can go into remission for short or
long periods of time. I do think that Dr's feel that
once you have Lupus it will always be a health concern.
So in remissions there is always the chance it can come back. As far as 40 years old having to do with Lupus
remission, I'm not sure about that. But, many studies
suggest that Lupus and Hormones might be related so as
a female gets older and hormone levels decrease this
may also lessen Lupus symptoms. There are concerns
about taking hormone suppliments during menapause
for Lupus patients.

------------------

 
Old 04-09-2003, 05:00 PM   #12
Newbie
 
Join Date: Feb 2003
Location: Sheridan, AR USA
Posts: 3
sandrasue11 HB User
Smile

Hi. I was dx with lupus three years with 9 of 10 sym
but my ana remains negative. I have had trouble for years and didn't know what was going on because my gp throught you had to have a positve ana. My rehumy said that it is a low percentage that is neg but it does happen. My mother has anklosing spondylitis so that was what he was looking for. Since then my cousin have been diagnosed with a high ana and I have found out that several 2nd cousins have lupus both with a positive and neg. Good luck and don't get down.

 
Old 04-13-2003, 10:04 AM   #13
Newbie
 
Join Date: Apr 2003
Posts: 3
slik HB User
Wink

I have heard other people had neg. ANA readings, but it seems more & more are coming out of the closet!? By that I mean, years ago if you didn't have an high ANA reading, Dr.'s told everone " YOU DO NOT HAVE LUPUS" Time & cases of physical damage with no ANA is changing things I think !

Slik

 
Old 04-22-2003, 06:49 PM   #14
Newbie
 
Join Date: Apr 2003
Location: Hayward, CA
Posts: 1
safarikat HB User
Post

If your calcium levels are high, you might look into sarcoidosis.

 
Old 06-13-2003, 08:35 PM   #15
Newbie
 
Join Date: Jun 2003
Location: lakeland florida
Posts: 1
brazzib HB User
Talking

I was dx with Lupus in 1996. I had a Negative ANA but i was positive for anti Ro antibodies. I was tested recently but my ANA was negative again. My Rhuematologist told me that people with positive Ro antibodies can either have lupus or sjogrens syndrome. He performed the schimmers test and i didnt have sjogrens. I am confused about negative ANA. I know that I did meet like 6 of the criteria for lupus. Malar rash ( it looked like the hives), low grade fevers, swollen lymph glands, fatigue, joint pain with swelling, and skin lesions. I wonder sometimes did they make a mistake because i have a positive ANA.
__________________
Brazzib

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Is it possible to have a positive ANA, and then be NEGATIVE? teresacar Lupus 10 07-08-2008 10:19 AM
How can an ANA blood test go from positive to negative wynterq Lupus 17 02-10-2008 07:12 PM
New here - Do I have Lupus? Dawgswife Lupus 15 06-04-2007 07:45 PM
Have Lupus & having various new & increased existing problems LupieOne Multiple Sclerosis 11 04-03-2007 06:25 PM
How many have tested negative... gina9871 Lupus 14 07-16-2006 08:27 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (170), ladybud (41), AngelicBrat (16), luca689 (7), neveragain444 (6), ksp (6), luvinmusiq (5), brooklyngirl (4), Daisygrace (4), AgedFlowerChild (3)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (856), janewhite1 (823), Titchou (771), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (655), BlueSkies14 (610)



All times are GMT -7. The time now is 03:27 AM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!