VISUAL DISTURBANCES - Lupus Message Board

ADDY1234 · 09-23-2003, 10:00 AM

Thanks for the replys on my first post. Since then, I have been experiencing something that is beginning to make me a little scared. I have had 4 episodes of seeing "half of a sunburst" in my left vision field. It makes things look like it does when heat rises off of something like the pavement. It reminds me of colors you see when looking through one of those kids toys. It only lasts about 20 minutes or so and leaves me even more tired than i already am. The only thing that happens when I have had one of those is I get really dizzy and neauseated (sp?) but I don't have a headache with it or after it, just a feeling of fullness in my head. Could this be something related to lupus and should I contact my doctor? My family doctor is still in search of what is wrong with me and now I have this going on. I haven't called him because it seems that I am always at the doctor's office, I know they say "her again?". I guess what I am wondering is could this be lupus related? Or are my doc and I both on the wrong track. I go back for another antibody panel in November and I have prednisone to take as needed until then. Short background: +ebv, +ana, +tgb antibodies, +tpo antibodies, elevated sed rate, elevated dhea level, fatigue, joint pain, rash across cheeks and swollen eyes. Thanks so much, any and all advice or insight is appreciated!

PennyKandy · 09-23-2003, 10:29 AM

Not sure if it is lupus related or not, but here is what my eye doctor said....It is basically a migraine without the headache. I get the same thing but no headache. Lasts about 20 minutes, flashing colors, then it goes away.

Sampy123 · 09-30-2003, 04:33 AM

I know EXACTLY what they are. These are ocular migraines and I get at least 3 of them every month.

BarbaraH · 09-30-2003, 03:25 PM

Hi,

I have lupus, but have had migraines occasionally since I was 19 (long ago). My migraines usually start with the visual disturbance you described - sometimes it looks like the wavy air over a fire, sometimes one side of my field of vision is affected, sometimes the other and sometimes it's the center of my field of vision. If I can take one pill with Codeine and sleep for 2 hours, I don't get the headache.

Talk to your doctor - Barbara

Sampy123 · 10-01-2003, 05:20 PM

Don't just dismiss ocular migraines, as I have. I just found out that I had a stroke as a blood clot settled in my eye. I just found this out last night. Please read my post about the antiphospoholipid syndrome.