Hi! I don't formally have a diagnosis, but have a positive ANA and RA and high positive C reactive protein. I won't go into the long story of illnesses, but everything started since I definately had Lyme in 1999- it took four years to get treatment and by then I was really sick.
I have had both knees replaced and am constantly battling illness. But the reason I post today is with this problem. For almost 2 weeks now I have had SEVERE pain below one knee. I have been checked for blood clot, knee surgery, everything and ended up at a neurologist who said he felt it was a flare from the autoimmune disease and put me on neurotin and is increasing it every week. I am also on plaquinel and tegretol for trigeminal neuralgia.
My question is - has anyone else experienced this kind of severe pain like this. It is worse at night and I haven't slept for days. My dr also gave me tylenol with codeine which helps some but not at night very well.
I read about people's numbness and tingling, but this is PAIN. Thank you for your help.