Re: lupus and sacrioliitis
Mardee, hi. I'm really sorry you have so much going on. Awful! First, I also think that your rheumie has to be deeply involved. And (just curious), do you know HOW you got the spinal fractures? I'm curious because I *think* I've read that Vitamin D deficiency affects bone mineralization.
Personally I wouldn't entertain back surgery without at least two opinions from orthopedic surgeons.
A few days ago I saw a TV show featuring patients with elusive problems. One woman had severe GI problems, screaming back pain, neuro problems, and visual disturbances. After 12 yrs, she learned she lacked IF = intrinsic factor: her Dx was pernicious anemia. Her final specialist, a rheumie, noted that severe back & GI problems are symptoms; and that a small subset of people with the condition (confusingly) have normal *iron* levels. The woman will need B-12 shots for the rest of her life.
Sorry... that story was WAY out of LEFT FIELD, huh???! But what you wrote about very low *Vitamin D* made me wonder about *its* causes & effects. In summary, in your shoes I'd definitely want multiple specialists on the same page before entertaining surgery. Post more soon, OK? Sending you my warmest wishes, Vee