It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 06-19-2009, 04:31 PM   #1
Registered User
(female)
 
Join Date: Jun 2009
Location: Lake Havasu City, AZ USA
Posts: 1
MARDEESUE2 HB User
lupus and sacrioliitis

I hope this makes scense. i have lupus with many overlapping autoimmune diseases, i have been complaining of low back pain and not able to walk or stand for more than 2 or so minutes this has been going on for about 3 years now which was a progressive type of pain and grew with each addtional symptoms. I had an NCV with results of abnormal slowing as being peripheal nuerapathy in both legs i found out last month that i have sacriolitiis which added to the DJD, DDD, Smorels Nodes and end plate wedging with fractures in the lower spine. my question is my latest labs results are showng progessive disease activity for my lupus and my non mobility from the extreme lumbar pain is causing many health problems, high BP, 750 tryglicerites, very low vit D just to name a few. would you recommend surgery for my back before controlling my autoimmune diseases? i feel if i had mobility i could excersize and then agressiveloy treat my diseases. HELP,,,
THANK YOU SO MUCH IN ADVANCE FOR YOUR OPINIONS
MARDEE

 
Old 06-19-2009, 09:21 PM   #2
Junior Member
(female)
 
Join Date: Aug 2005
Location: washington
Posts: 37
pearless HB User
Re: lupus and sacrioliitis

What does your rheumy say. I know there was one point when I saw a doc in lake havasu that he wouldnt touch me with a ten foot pole. Said I was not a canidate for surgery but I was also in full blown lupus flare non stop with hyperthyroid, pernisious anemia, 2 back fractures, and interstitial lung disease from lupus. It was very difficult dealing with the high intense heat there and the sun every (almost) every day. I feel for you. I would talk with your rheumy to see what he thinks. You will need him and your surgeon to be on the same page.

 
Sponsors Lightbulb
   
Old 06-20-2009, 06:41 AM   #3
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 4,943
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: lupus and sacrioliitis

Mardee, hi. I'm really sorry you have so much going on. Awful! First, I also think that your rheumie has to be deeply involved. And (just curious), do you know HOW you got the spinal fractures? I'm curious because I *think* I've read that Vitamin D deficiency affects bone mineralization.

Personally I wouldn't entertain back surgery without at least two opinions from orthopedic surgeons.

A few days ago I saw a TV show featuring patients with elusive problems. One woman had severe GI problems, screaming back pain, neuro problems, and visual disturbances. After 12 yrs, she learned she lacked IF = intrinsic factor: her Dx was pernicious anemia. Her final specialist, a rheumie, noted that severe back & GI problems are symptoms; and that a small subset of people with the condition (confusingly) have normal *iron* levels. The woman will need B-12 shots for the rest of her life.

Sorry... that story was WAY out of LEFT FIELD, huh???! But what you wrote about very low *Vitamin D* made me wonder about *its* causes & effects. In summary, in your shoes I'd definitely want multiple specialists on the same page before entertaining surgery. Post more soon, OK? Sending you my warmest wishes, Vee

 
Old 06-20-2009, 07:06 PM   #4
Junior Member
(female)
 
Join Date: Aug 2005
Location: washington
Posts: 37
pearless HB User
Re: lupus and sacrioliitis

Thanks VeeJ for that info. Ive not heard of it, never really gave a second thought to my pernisous anemia before because my B12 was ok.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
hives and lupus tigerpaw Lupus 7 04-23-2010 07:07 AM
Family members with Lupus? Dj1Chickee Lupus 4 04-22-2007 08:50 AM
Does ANA-negative lupus exist? Blessed4Life Lupus 4 08-21-2005 06:42 AM
Lupus vs. Lyme Ceya Lyme Disease 17 11-10-2004 05:41 PM
Fibromyalgia-Lupus, what's the difference? marmstrong Lupus 23 07-13-2004 06:20 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (172), ladybud (43), AngelicBrat (16), luca689 (7), ksp (6), neveragain444 (6), luvinmusiq (5), brooklyngirl (4), Daisygrace (4), AgedFlowerChild (3)

Site Wide Totals

teteri66 (1180), MSJayhawk (1005), Apollo123 (905), Titchou (848), janewhite1 (823), Gabriel (759), ladybud (754), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 06:28 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!