herrimanml, welcome. Glad you found us here. I can recommend hardcovers written for patients that have a real wealth of info. You could borrow them from you local library, for a test drive. My fave is by Dr. Daniel Wallace. Another by Dr. Robert Lahita is also chock-full of info.
As far as Tylenol (etc.): I take Advil in addition to Plaquenil, BUT it's ALWAYS a good idea to ask your rheumie first, to make sure nothing else you have or that you currently take conflicts with it!
As far as headaches: I used to get a lot of killer headaches. Haven't had a big one in years. But this summer I could feel one "hinting" frequently. This summer I also had chronic pain, the worst I;ve had since being Dx'ed. Don't know whether it was weather adding onto my normal spring/summer blah's? (FYI, many lupus patients are walking barometers.)
I took Bellergal & Fional (at separate times, not together
) years back. They knocked out my headaches---but me, too, alas. I think you should speak to your rheumie again about your headaches.
YES, you may ask for bloodwork---good idea, esp. when you feel you're especially "off".
I had back & arm rashes, too: large targetlike circles that didn't scar or depigment. What are your rashes like? I was positive for anti-Ro; and like many in that "subset" of lupus patients, I have to avoid sun religiously; and must wear hats with large brims, long sleeves & long pants, lots of block on my exposed skin, etc. I hate it profoundly---but I do it.
Being tired but not able to sleep---me, too, in phases sometimes lasting months. I think pain may also wake me up, or shorten my sleep. I wish I had good answers, not just sit hear telling you "DITTO". If your meds aren't controlling things well, you should have your rheumie re-evaluatate them.
When you get your bloodwork copies, you could post more specifics. Someone here can probably help you organize your questions. (We're just patients, not drs., but we often can do a decent job suggesting pointed questions to ask.) I hope you keep posting here, as we're good company & have a really wide range of problems. No matter how weird a symptom seems, you'll be surprised to find that others often are familiar with it. Until later, sending you warm wishes, sincerely, Vee