Pain! - Lupus Message Board

k2626 · 09-29-2009, 12:22 AM

Hi all, a yr ago I started to get very painful migratory joint pains, normally in random fingers/toes ankle. They calmed down a lot about 6 months ago and over the past couple days I have been getting them horribly in odd parts of my fingers, always effecting a joint. Thankfully the pain lasts a couple seconds but then hops elsewhere or comes back minutes later. I feel as though the pains are worse then usual. The thing is, there is no swelling. It almost feels like a deep toothache but in btw my joints, or how it feels when you drop something on your toe when its really cold.

Also, I still have tons of red painful bumps on my scalp. I am going to my derm on Friday and have a msg out to my rheum to undergo more tests

Does anyone here get pains like this? They are so painful they make me catch my breath

riedeselchar · 09-29-2009, 06:17 AM

That is how my pain feels. I haven't yet been diagnosed but go back Monday to get test results. I know what you mean, cause that is my pain to a T. The pains last for seconds go away and come back. Sometimes my pain lasts longer, but right now mostly just twinges as i call them. Hopefully you get answers...Good Luck!!

goldyfm · 09-29-2009, 11:24 AM

I suppose that this may be a possibility and I am at a disadvantage as I have fibromyalgia and lupus. I know that I feel that the majority of my symptoms are from the lupus but of course, it would be impossible to prove. I only know that I have had some improvement since on the lupus treatment. I have to defer judgement to those that are lupus only. But I will say that the twinges, sudden and then fleeting pain was present in the beginning of my onset of symptoms but that gradually increased to almost constant pain. It is a strange disorder as it can affect joints in some, skin in others and organ systems in others. I would be patient until you get some answers. I know that often times it is a wait and see, I do hope that you find some answers soon. I know others who may not have dual diagnoses may be able to share a little more light on the subject. I do know that several auto-immune diseases often have the common instance of heightened sensitivity to pain. I suggest that you read the sticky posts at the top of the lupus board as it is a wonderful source of information on the disease.

sk84life · 09-29-2009, 02:51 PM

Yes, I was having them too.....and still get them at times, although much less since I was put on Plaquanil and it is beginning to work (2-1/2 months.) Migratory joint pains without obvious swelling is quite common in lupus....more noticable during a flare although you might not think you are having a flare

I do hope you are seeking the help of a rheumatologist.